SMA touched my family back in 2006, my cousins lovely baby Corben Robert was taken at the age of 9 months. It was to cast a shadow once again over a family friend and took Abigail Sheila, aged just  8 months. Both children remembered for their sunny smiles and gorgeous personalities xxx

SMA is the leading genetic killer of under 2's in the UK, yet many people have never heard of it

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