Raised: 319%
 
Target: £1,000.00
Raised so far: £3,198.00
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Thanks for taking the time to visit my JustGiving page.

Our daughter Emmy has Bardet Biedl Syndrome (BBS), she is only 8 years old and this syndrome has already had a huge impact on her life and in turn our families.   We are holding a Sponsored Walk/Run on Saturday 3 July 2010 at Pitsford Reservoir, which is part of a national fundraising event, organised by the LMBBS Society, (Reg. Charity No: 1027384), a voluntary organisation, primarily supporting people affected by the Laurence Moon Bardet Biedl syndrome. 

This is a rare genetic disorder, which can include visual impairment usually leading to blindness, kidney disease, obesity, learning difficulties and many other problems.  Our daughter Emmy is now registered blind due to her reduced visual field and she has night blindness.  Emmy is now also receiving cane training to help her mobility in dusk/dark evenings and will from now on have to have her kidneys regularly monitored to ensure they are healthy.

We recently spent a weekend at a Conference organised by the LMBBS Charity, this is a chance for all families to meet up and gain vital information and most importantly the chance for the children and adults who have BBS to share experiences and time with others in their situation.  The Society arranges a full conference day with guest speakers who range from Medical Experts in their fields to support experts to help with day to day living.  They also arrange for the Children to have a day out to a theme park and countless entertainment/ activities for them for the evening.  The society is run by volunteers and relies on donations and fundraising to keep going with their vital work.

Coming away from this conference we felt compelled as a family to give something back to this Charity and the remarkable people that voluntarily put so much into the LMBBS Society.  We have decided along with Emmy and her brother and sister to do a sponsored walk around our local country park which is 7 miles.  Emmy herself wants to take part and hopefully will be walking at least half of the distance, please sponsor her or the person walking on her behalf.

 

Donating through JustGiving is simple, fast and totally secure.  Your details are safe with JustGiving - they'll never sell them on or send unwanted emails.  Once you donate, they'll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer.  So it's the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

 

So please dig deep and donate now.

 

Thanks for your support.

Claire & Jason

James, Emmy & Holly

 

So please dig deep and donate now.

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Hi Claire, I finally got round to sorting it out!!! Well done to you all, so proud of you. Sally xx Donation by Sally Paddison on 10/09/10

 
£20.00
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Hi Claire & family, sorry about the delay with my donation! You've raised an impressive amount of money, well done to everyone who took part. Donation by Paula Rissanen on 12/08/10

 
£20.00 + £5.64 Gift Aid
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I am donating as a result of the Radio 4 Appeal which as a grandmother touched me. Donation by Susan Steele on 19/07/10

 
£10.00 + £2.82 Gift Aid
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EMMY well done you have raised so much money. You can be very proud. Seaside Grandad and Jan xx Donation by Michael Anstee on 04/07/10

 
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Congratulations on a great effort and hitting the target. Donation by Bernie on 04/07/10

 
£30.00 + £8.46 Gift Aid
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hope you had a wonderful day, keep up the good work :) xxxx Donation by Lisa McDonagh on 04/07/10

 
£10.00
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I hope this gets you to your target!!!!!! Donation by lee chamberlain on 04/07/10

 
£40.00 + £11.28 Gift Aid
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Dear Emmy, We have donated £50 towards your charity and a further £10 per mile that we walked together with you... Well Done! We are so proud of you. Donation by Norbert, Olivia + Aimee Roth on 03/07/10

 
£80.00 + £22.56 Gift Aid
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I am unable to attend, but I wish you the best of luck reaching the target. Donation by Dan de Banke on 02/07/10

 
£20.00 + £5.64 Gift Aid
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Sorry I can't attend but sending lots of good luck wishes for tomorrow. Hope you reach your target ... Your nearly there! Wendy, Mark and family xx Donation by Wendy Clarke on 02/07/10

 
£10.00 + £2.82 Gift Aid
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Good luck - hope you reach your target Donation by Linda Tiplady on 02/07/10

 
£5.00 + £1.41 Gift Aid
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good luck! hope it doesnt rain!! Donation by Angela Worth on 02/07/10

 
£15.00 + £4.23 Gift Aid

Donation by adrian johnston on 02/07/10

 
£15.00 + £4.23 Gift Aid
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Good Luck, sorry we are not able to come. Emma, Dan, Sophie and George Donation by Emma Simmonds on 01/07/10

 
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Good luck Donation by Paul Steadman on 01/07/10

 
£10.00 + £2.82 Gift Aid
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Donation by mike honour on 01/07/10

 
£5.00 + £1.41 Gift Aid
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Good luck Donation by David Posgate on 30/06/10

 
£15.00 + £4.23 Gift Aid
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All the best Donation by Andrew Short on 30/06/10

 
£20.00 + £5.64 Gift Aid
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Good Luck Emmy from one of Uncle Richard's colleagues. Donation by Justine Smith on 29/06/10

 
£5.00 + £1.41 Gift Aid
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Good luck Donation by Stuart Shipp on 29/06/10

 
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Good Luck Emmy Donation by Dave Dawett on 29/06/10

 
£20.00 + £5.64 Gift Aid
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Good luck Richard Donation by Michael Buchan on 29/06/10

 
£15.00 + £4.23 Gift Aid
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Great cause, you'll never manage it with those legs Richard! Donation by Jerry Page on 29/06/10

 
£15.00 + £4.23 Gift Aid
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Good Luck Emmy Donation by Iris Jos-Wynne on 29/06/10

 
£15.00 + £4.23 Gift Aid
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Donation by richard harris on 29/06/10

 
£10.00 + £2.82 Gift Aid
Donate now
 
* Total raised online: £940.00
  Offline donations: £2,258.00
  Mobile donations: £0.00
  Total Raised: £3,198.00
  Gift Aid plus supplement: £241.15

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Find out how much it is and what we do for it.