Thanks for taking the time to visit my JustGiving page raising awareness and money to support people with Ehlers Danlos Syndrome.

Hi all!!

Those who know me have seen my life dramatically change over the last few years. I went from a thousand mile an hour youth worker, fire dancer & party queen to confined to a wheelchair & bedbound almost overnight. (Still wore my beastie heels when in my wheelchair!) My mystery illness turned out to be a rare condition called Ehlers Danlos Syndrome. 

ABOUT EDS..

Ehlers Danlos Syndrome (EDS) is a connective tissue disorder. The body produces faulty collagen. Collagen is the glue to your body & is found everywhere. Therefore anything can go wrong. People with EDS commonly dislocate joints on a daily basis & live in constant pain. People with Vascular EDS face an increased risk of life-threatening complications. Even a minor trauma can lead to an arterial rupture causing instant death. For more information see www.ehlers-danlos.org 

THE 02!

My obsession with the 02 walkway came when visiting the 02 to watch a show in my wheelchair. I watched as a group of excited people began to make the climb. I decided that one day i would get out my wheelchair and walk it! Since then i have been working very hard with my physiotherapist to gain the strength to walk. There has been a lot of pain, frustraition, dislocations, relapses and tears. But now i feel i am ready!!

WHY NOW?

As far as my health is concerned, August seems to be quite a significant month for me. My August timeline:

August 16th 2010 - Collapsed in work, became bedbound.

August 16th 2011- Gave birth to Adelle, investigations into my health accelerated after complications. 

August 21st 2012- Finally diagnosed with EDS

August 22nd 2012- Decided to use my wheelchair less, hard physio

August 31st 2013- Walk over The 02!!

 

This is a decision not taken lightly. I have clearence from my physio & will have a lot of support on the day from my partner Adam & son Callum. I could & probably will dislocate. I will also be in immense pain and will need to spend a few days recovering in bed after. However i want to do this for my personal achievement and to raise money & awareness for other EDS sufferers. Being a rare disorder the research into this life long condition is next to nothing. Every penny helps & is so needed.

So please donate! I thank you all in advance xxx 

 

 

 

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So please dig deep and donate now.