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Lily has MPS 111A Sanfilippo disease, it is a life limiting illness with no cure.

Lily on the outside is a happy on the go 6 year old who loves Disney's Mickey and Minnie Mouse as well as Alvin and the chipmunks.

However life on the inside is rapidly changing Lily.

Lilys rare condition increases on a daily basis which slows down Lily's ability to do everything.Basic tasks such as listeneing and talking have already declined .

Eventually lily will lose the ability to do the basic tasks , have no self dependency  and will totally rely on 24-7 support.

The Genistein trials of which we are raising funds for is our only hope of trying to secure some form of medical help for lily and mps affected children , to assist with some form of comfort for the future.

So Lilys family  ( Scott Brooker aka daddy, uncles Nick Brooker, Dayne Brooker, Simon Brooker, and auntie Danelle Hayes along with our friend Becky Oliver) are running ( well we are going to try ! ) the london 10k marathon on July 14th 2013 .

All sponsorship and support will be going to help raise funds for The MPS society and the Genistein clinical trial.

This trial , being offered from the united states , has no governemt backing and has come to a halt because more money is needed to enable the medical licence to be granted , before being offered to MPS affected children.

At present this , for families of MPS sufferers , is the only ray of light to help our children have a hope of a better future, of less discomfort and perhaps a more dignified life from this terrible illness.

Please help us by donating. Thank you.    Lily's runners. Xxxxx

For more information , please log onto the MPS society uk web page ,  wicked genes and all Genestein Trial Fundraisers .

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So please dig deep and donate now.