Updated on Apr 23rd 2012 at 4:07 PM from the JustGiving API

£600 raised for Williams Syndrome brilliant :)

Updated on Apr 23rd 2012 at 4:06 PM from the JustGiving API

£600 raised for Williams Syndrome brilliant :)

Updated on Aug 26th 2011 at 8:49 PM from the JustGiving API

Missing you

Updated on Jul 17th 2011 at 2:38 PM from the JustGiving API

Missing you xxx

Updated on Mar 6th 2011 at 6:10 PM from the JustGiving API

It's been 3 years 3 months 3 weeks and 4 days without you and you've been missed for every second of it. Xxx

Updated on Jan 22nd 2011 at 5:29 PM from the JustGiving API

In memory of my beautiful daughter

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Sophie was born 5 weeks early on the 9th November 2007, weighing a dainty 4lb 4.5ounces, she came rocketting into the world with her arm up by the side of her face like Superman and was instantly taken to intensive care. She had afew breathing difficulties but grew stronger and bigger every day and on the 22nd November was allowed home.

We were told she had a minor heart condition called Pulmonary Stenosis but it would likely correct itself as she grew so we didnt worry too much. Me, her daddy and big sister settled into our happy new lives with our little baby girl but it wasn't to last. 

On Monday December 3rd 2007 I was left with Sophie for the first time, Jason went back to work and Naomi went to school. The day was going well, the health visitor had been out and weighed her and she was up to 5lb 2ounces, everything seemed fine. Then an hour later Sophie took a seizure and stopped breathing right infront of my eyes, she passed away in my arms before the ambulance could get to her, they tried so hard at the hospital to revive her but there was nothing they could do leaving us devasted and heartbroken. All of our dreams shattered and a nightmare beginning.

It wasn't until 7 months later we were told that Sophie had Williams Syndrome, we were shocked and confused as they had done chromosome tests on her in the hospital when she was born and they had came back normal. We had never heard of Williams Syndrome before and knew nothing about it.

Williams is a rare genetic disorder which affects 1 in 25,000 so Sophie really was a special little girl.

Sophie would have been 4 now and I miss her every single day, she has left a huge hole in our lives and hearts and it hurts as much now as it did the day she died.  I miss the life she should have had and feel cheated in every single way. I wonder what she would have been like as a little person and also as a child with Williams.

I am creating this page and hope that family and friends will honour Sophie's memory and donate even a small amount of money which will go to the Williams Syndrome foundation and help with research into WS and help others live with this rare genetic disorder. For more infomation on Williams Syndrome go to www.williams-sydrome.org.uk

'You left and forgot to tell my heart how to live without you'

So sweet, so small, so soon.

Sophie Iris McKay ~ In our lives for a moment, but our hearts forever.

 

Thank you