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Great Manchester Run Half Marathon 2018 · 20 May 2018 ·

NPUK is dedicated to making a positive difference to the lives of people affected by Niemann-Pick diseases and their families. Our vision is a world where those affected can meaningfully participate in society, reach their full potential and achieve the best possible quality of life.

Story

My gorgeous little nephew was born in 2016 and was diagnosed with Niemann-Pick (Type C) disease shortly after his birth. My sister and my nephew have received a lot of help/support from NPUK.

This amazing but small charity provide vital support to families touched by this cruel disease and help fund vital future research.

 Niemann-Pick Type C (NP-C) is a rare inherited neurodegenerative disease that affects infants, children and adults. It is caused by an accumulation of lipids (fats) in the liver, brain and spleen. The age of onset and rate of disease progression can vary greatly from person to person; for example some children develop neurological symptoms early in childhood, whereas others may remain symptom free for a number of years. 

I am running 6 Half Marathons in 6 months to raise money for NPUK.

1: Stratford Half 13th May 2018 (Completed 2hrs 5 mins)

2: Manchester Half 20th May 2018 (Completed 2hrs 4mins)

3: Bham Black Contry Half 7th July 2018 (Completed 2hrs 1 min)

4: Worcester Half 16th September 2018 (Completed 1hr 49 mins)

5: Cheltenham Half 30th September 2018 (Completed 1hr 47mins)

6: Birmingham Half 14th October 2018

Please dig deep and donate.

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Donation summary

Total
£1,228.00
+ £232.00 Gift Aid
Online
£1,228.00
Offline
£0.00

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