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6 Half Marathons in 6 months · 28 April 2019

NPUK is dedicated to making a positive difference to the lives of people affected by Niemann-Pick diseases and their families. Our vision is a world where those affected can meaningfully participate in society, reach their full potential and achieve the best possible quality of life.

Story

My gorgeous little nephew was born in 2016 and was diagnosed with Niemann-Pick (Type C) disease shortly after his birth. My sister her partner Steve and my nephew have received a lot of help/support from NPUK.

This amazing but small charity provide vital support to families touched by this cruel disease and help fund vital future research.

 Niemann-Pick Type C (NP-C) is a rare inherited neurodegenerative disease that affects infants, children and adults. It is caused by an accumulation of lipids (fats) in the liver, brain and spleen. The age of onset and rate of disease progression can vary greatly from person to person; for example some children develop neurological symptoms early in childhood, whereas others may remain symptom free for a number of years. 

I am running 6 Half Marathons in 6 months to raise money for NPUK and planning to beat my previous times below

1: Stratford Half 28th April2019 (completed 1hr 47)

(Completed 2018 in 2hrs 5 mins)

2: Gloucester Half 4th August 2019

(Manchester 2018 in 2hrs 3 mins)

3: Bham Black Contry Half 4th July 2019

(Completed 2018 in2hrs 1 min)

4: Worcester Half 15th September 2019

 (Completed 2018 in1hr 49 mins)

5: Cheltenham Half 29th September 2019

 (Completed 2018 in 1hr 47mins)

6: Birmingham Half 13th October 2019

(Completed 2018 in 1 hr 49)

Please dig deep and donate.

Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.




Thanks for taking the time to visit my JustGiving page.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving - they'll never sell them on or send unwanted emails. Once you donate, they'll send your money directly to the charity. So it's the most efficient way to donate - saving time and cutting costs for the charity.

Help Nick Vakis-Lowe

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Donation summary

Total
£180.00
+ £32.50 Gift Aid
Online
£180.00
Offline
£0.00

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