Nick Sireau

Nick's Military Run Page

Fundraising for The Alkaptonuria Society
£1,653
raised of £2,000 target
by 31 supporters
Donations cannot currently be made to this page
Participants: Nick Sireau
The Alkaptonuria Society

Verified by JustGiving

RCN 1101052
We provide crucial information and support to patients living with Black Bone Disease

Story

Call me mad, call me crazy -but I've just signed up for a 10k Military Run to raise funds for the AKU Society...

You can donate here. My initial target is £2,000, but I'll go higher if we break it! 

I'll be clambering over obstacles, delving into ditches, wading through water, sloshing through mud, pushing through trees and undergrowth, and staggering up and down plenty of hills. Organised by British Military Fitness, it promises to be quite an experience...

Would you like to sponsor me? This page is a safe and easy way to donate straight to the AKU Society.

I'm raising funds for our study of how AKU affects children. Nobody knows how AKU affects children. Even though the visible symptoms (joint and heart disease, etc) appear only in adulthood, the underlying damage caused by AKU's Black Bone Disease may be starting much earlier. That's what we want to find out as it will help us decide when to start treatment before it's too late.

Thanks to the untiring work of our medical director, Dr L Ranganath, we have an excellent study design. We'll be doing MRI scans of the joints, X-rays of the bones, echocardiograms of the heart, urine and blood tests and many other tests. 

This is crucially important for our work. That's why your support is so important. So come on, dig deep, I won't let you down.

The total study costs £19,000, of which we've raised half. So whatever money you give will go towards reaching the total.


And for those who think they're tough enough, why not join me and also raise funds for AKU? You can read about the Military Run, watch the videos and sign up here: http://www.bmfadventures.com/adventures/challenges-and-races/13/military-5k-and-10k-london.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now.

 

About the charity

The Alkaptonuria Society

Verified by JustGiving

RCN 1101052
Transforming the lives of alkaptonuria (AKU) patients and their families, through patient support, community building and medical research. Help us cure the first genetic disease ever discovered by donating today.

Donation summary

Total raised
£1,653.00
+ £231.22 Gift Aid
Online donations
£1,653.00
Offline donations
£0.00

* Charities pay a small fee for our service. Find out how much it is and what we do for it.