Patty Barry

Remembering Emily

Fundraising for SUDEP Action
£4,746
raised of £500 target
by 36 supporters
In memory of Emily Spayne
SUDEP Action

Verified by JustGiving

RCN 1164250 (England & Wales) SC047223 (Scotland)
We raise SUDEP & epilepsy risks awareness to prevent deaths & support those bereaved

Story

Thanks for taking the time to visit my JustGiving page.

Emily was the most kind caring & beautiful daughter, sister & Auntie. On Friday 26th April our beautiful sister Emily finally took the courage of moving out of the family home and move into her own flat. This was Emily’s first big step in life and she was both excited & nervous and over the moon to have her own place at the age of 26. Sadly during the early hours of Tuesday 30th April 2019 our beautiful sister Emily suffered an Epileptic seizure and passed away suddenly in her sleep. As a family we are completely devastated and heart broken to lose our Emily with no warning and torturing ourselves asking why? Why Emily? Why did she have to go? Would she still be here if she was at home? The pain and torture is unbearable. SUDEP Action is a charity who support families like ours to help give bereavement support. Emily is one of many young people who have had their lives stolen by Epilepsy, a condition none of us knew could take her life from her. As a family we want to support the charity SUDEP Action to raise money & awareness to help prevent deaths such as Emily’s  and prevent families suffering the pain and heart ache that we are experiencing which will never go away. Thank you for your support. Fly high Emily our beautiful sister, forever young xxxxx

About the charity

SUDEP Action

Verified by JustGiving

RCN 1164250 (England & Wales) SC047223 (Scotland)
At least 21 people with epilepsy in the UK die each week. SUDEP Action, is the only UK charity dedicated to supporting those bereaved by epilepsy, raising awareness of epilepsy risks and tackling deaths in people with epilepsy, including Sudden Unexpected Death in Epilepsy (SUDEP).

Donation summary

Total raised
£4,746.00
+ £120.33 Gift Aid
Online donations
£4,746.00
Offline donations
£0.00

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