Rachael Grist
Rachael (Tilli) Grist runs the London and Edinburgh Marathons for DebRA
Fundraising for DEBRA
Story
Our daughter, Isla, was born on 2nd July 2008 without any Collagen VII, the protein that anchors the layers of skin together. She is classed as having the most severe form of a condition called Recessive Dystrophic Epidermolysis Bullosa (EB), a devastating blistering skin disorder that is life shortening and limiting, and causes disability and severe pain.
I thought it would be a great opportunity to run the Virgin London Marathon (25th April 2010) and Edinburgh Marathon (23rd May 2010), in support of everything DebRA does for Isla, so please give generously. I thank you for your invaluable support and kindness.Donating through this site is simple, fast and totally secure. It is also the most efficient way to support DebRA. DebRA will receive your money faster and, if you are a UK taxpayer, an extra 28% in tax will be added to your gift at no cost to you.
For more information, and to view a short video clip showing the reality of living with EB, please visit www.debra.org.uk.