Story
<p>Hello everyone, my name is Shannon Rose Mallon, I am 3 years old. I am organising the following events to help raise money for the MPS Society ( Society for Mucoplysaccharide Diseases). This is an amazing charity who supports children and adults like me - people who are affected by rare, genetic, life limiting diseases.</p>
<p><strong>Sunday 03 June 2012</strong></p>
<p><strong>5 Mile Walk/Run starting The Square Keady at 12.30pm </strong><strong>£5 per person</strong></p>
<p><strong>Ceili in St Patricks Hall Keady from 3.30pm - 6.30pm </strong><strong>£5 per person</strong></p>
<p>On the 9 April 2009 I was born a healthy little girl, like all other little kids I use to babble, laugh, feed myself, roll on the ground, and play with my cousins. When I was one years old I took really sick with an ear infection and from then on I started to lose all the wee skills that I had learnt, as time went on things got progressively worse. I gradually stopped rolling, feeding myself playing and laughing. All other kids my age were developmentally leaving me behind. When I was 18 months, after two weeks of major investigations at the Royal Hospital, a consultant from England came over to see me to tell me that I had a very rare metabolic condition called GM1 Gangliosidosis. This is a really big word, but it basically means my body is not producing a particular enzyme which is vital for breaking down fats in my body. As a result these harmful fats have been building up in my body tissue and cells over time and have been attacking my brain and nervous system. This is why I have lost all my fine and gross motor skills. This was a really sad day for me and my family as the consultant told me it was a progressive illness for which there was no cure. We were really shocked as I am the only known case of it in Northern Ireland and perhaps the whole of the UK.</p>
<p>There may be no cure for me today but this wonderful charity MPS supports people like me. They create public awareness for conditions like mine, they act as a support network to families and they promote and support research into MPS related diseases. If a cure is ever found for me I know this charity will be right behind me. My mummy told me things are really tough for people these days as we are in recession, I don't really know what that means as i'm only 3 years old but if everyone gave a small donation, if we could raise money and save one child's life wouldn't that be great?</p>
<p>If you would like a sponsor sheet here is the link</p>
<div><span style="font-family: Arial; font-size: x-small;"><a title="blocked::http://mpssociety.co.uk/uploads/MPS Sponsorship Form.pdf" href="http://mpssociety.co.uk/uploads/MPS%20Sponsorship%20Form.pdf">http://mpssociety.co.uk/uploads/MPS%20Sponsorship%20Form.pdf</a></span></div>
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<p><strong>SO..... CAN YOU LEND A HAND?</strong></p>
<p><strong>HELP FOR TODAY. HOPE FOR TOMORROW. </strong></p>
<p><strong>See u on 3rd June 2012</strong></p>
<p><strong>Shannon Rose.x.</strong></p>