Scott McMaster

Scott McMaster

Fundraising for Reverse Rett
£6,268
raised of £5,000 target
by 130 supporters
Donations cannot currently be made to this page
Event: London to Brighton Challenge 2019, from 25 May 2019 to 26 May 2019
Participants: Andy Shaw, Scott McMaster
Reverse Rett

Verified by JustGiving

RCN 1136809
We 're working to bring treatments for Rett Syndrome home

Story

In December 2015 my wife Kate and I were given the devastating news that their beautiful wee girl Kim has Rett Syndrome........

This did not only touch their immediate family but ourselves and many friends have been affected by this diagnosis and I am delighted and excited that my oldest friend Andy will be joining me on this challenge to raise much needed funds.

Rett Syndrome is not a condition many have heard of..........what is it?

Rett Syndrome is a neurological disorder that can strike little girls at an early age with no warning. Kim was born, as far as we were all aware, a gorgeous, perfect healthy wee girl with a full and exciting life ahead of her, five years on it has become clear that her future is now frighteningly uncertain. 

At around one years old we began to become slightly concerned as Kim seemed to be falling behind her friends with regards to her development and as time went on these concerns grew. Kim has never crawled, walked or talked and even sitting up is a real struggle for her. The few skills she did develop including finger feeding and playing with toys have been stolen from her as she has lost the use of her hands. There are many, many other complications that may develop over time............

We will not accept this for our gorgeous, bright, cheeky and giggly girl.....

Reverse Rett has given us hope, there has been some amazing research carried out by some fantastic minds all over the world with much of it being undertaken in Glasgow and Edinburgh, recent research has shown that a cure is possible and clinical trials are in the pipeline for this year. This means that more than ever funds are needed to be raised to push us over the finish line for Kim and all the other gorgeous girls around the world like Kim.

So please if you can help us to get rid of Rett and make Kim better and hopefully one day she will be able to chat, play and run around like all of her friends by supporting this great charity. 

Please help if you can, Scott & Andy

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About the charity

Reverse Rett

Verified by JustGiving

RCN 1136809
Reverse Rett is a patient advocacy and research organisation focused on delivering treatment for Rett Syndrome to all affected. Read more here: reverserett.org.uk For Rett Registry UK: https://www.rettregistry.uk/

Donation summary

Total raised
£6,267.79
+ £1,262.75 Gift Aid
Online donations
£6,227.79
Offline donations
£40.00

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