Kate Henaghan-Sykes

Donations in memory of Shelagh Bone

Fundraising for Wolf Hirschhorn Syndrome Trust
£1,013
raised of £200 target
by 29 supporters
Donations cannot currently be made to this page
In memory of Shelagh Bone
Wolf Hirschhorn Syndrome Trust

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RCN 1038219
We provide information and support families to improve the lives of affected children

Story

Our beautiful Mam, Wife, Nana, Sister, Aunty and Friend passed away suddenly and unexpectedly on 4 April.  We are heartbroken.  Mam always said that when it was her time, she would prefer family flowers only and we understand some people would like to make a donation in her memory as an alternative. 

We decided that Mam would have wanted us to nominate the Wolf Hirschhorn Trust because it is a charity so close to our hearts.

Kian is my Mam’s  only Grandson and he has this condition, Craig and Madeline has fundraised over the years with my Mam’s full support from the sidelines, It is also fitting that Monday, the day of her funeral is Wolf Hirschhorn Syndrome day.  This would be a lovely gesture to honour the special relationship that my Mam and Kian shared.  

About the charity

Wolf Hirschhorn Syndrome Trust

Verified by JustGiving

RCN 1038219
The Wolf Hirschhorn Syndrome Trust supports families affected by this rare genetic disorder by providing information in the form of newsletters, organising biennial national meetings, promoting awareness, funding research and grants, and forming links with support groups around the world.

Donation summary

Total raised
£1,012.82
+ £127.50 Gift Aid
Online donations
£1,012.82
Offline donations
£0.00

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