Story
Hi All
As some of you may know iv suffered from Crohn's Disease for quite sometime now, infact since 2006, 5 months after giving birth to my son at the age of 22.
Prior to being diagnosed i had never heard of this disease as most people don't when they ask me why im poorly, the response i usually hear is 'what's that'! lol......therefore i feel this clearly means there is not enough going on in the world to educate people, specially when it effects approx 60'000 people in the UK.
This illness is UNBELIEVEABLY tough to live with.....when flaring it is 'incrediably' painful and theres been a many a time that its required hospital visits and morphine injects....i find a lot of the time it is hard for people to understand as i believe it is a very invisible disease, on the outside we can look well, act well, smile through the pain, but all we are is experienced actors! I'm sure i speak for every Crohn's sufferer when i say that.
Crohns has become something that i found extremely difficult to accept once i first got diagnosed, it has certainly changed me as a person for good and for bad.....
At present there is no cure for Crohns or Colitis, and i feel the more publicity that NACC receive will hopefully help in one day making sure there is a cure.
There are new drugs always coming out, sometimes the drug side effects are far far worse than the disease its self. I will remain on drugs for the rest of my life, most probably eventually needing some of my bowel took out and resectioning, and most people quite possibly needing a full bowel removal.
The 'tests' themselves are very very painful, and some can be embarassing, but after 5 years im a bit of a pro and can laught it off...i feel crippled by something most days, whether it be joint pain, blood loss, anaemia, and also the drugs suppress my immune system meaning i do tend to pick up every infection on this planet!!!
My main aim for this page is give something back into the research of this illness, for myself and for fellow sufferers...i feel i have been given so much through the NHS funding with expensive medications, hospital visits etc and it would be nice to know i can raise awareness and collate some money for the NACC.
My one love is Horses & animals, and i hope people reading this page that also suffer from Crohns, Colitis or any other invisible illness will seek a bit of inspiration to prove that even though we have a disability, altho not always visible we should follow on doing the things we love, and learn to live with it...if anything having Crohns has improved my life, i see it as a positive, it has made me more determined to always put 110% into everything i do.....
Even if its only a couple of pence or a pound, every little bit would help towards improving the lives of sufferers.
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