Steven Roberts is fundraising for Stickler Syndrome Support Group

Steven's page

Virgin London Marathon 2012

on 22/04/2012

Me and Harvey

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Me and Harvey

Barnsley Chronicle

Bath Half Marathon

Royston Rock Night

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Raising money for Stickler Syndrome Support Group

Charity Registration No. 1060421

Stickler Syndrome Support Group aims to raise awareness of Stickler syndrome amongst the medical profession; promote the value of early diagnosis for adults and children with the condition to help preserve vision, particularly the prevention of blindness in children and adults.

Page owner

Steven Roberts

Raised: 110%

Target: £2,000.00
Raised so far: £2,215.00

Donate now

Thanks for taking the time to visit my JustGiving page.

This page is linked to the London Marathon, but I'm actually running the Bath Half Marathon on 11/03/2012, then the South Yorkshire Half Marathon on 18/03/2012 followed by the London Marathon on 22/04/2012 thats 53 miles!

On 27th January 2008 my son Harvey Lee Roberts was born. Without a doubt the best day of my life, but soon turned into a nightmare as within hours of holding my son for the very first time he went blue and was rushed to intensive care. After what seemed like days of waiting we finally got briefed by a consultant. Harvey was diagnosed with a cleft palate (a slit in the roof of his mouth) on top of this due to other symptoms Stickler Syndrome was mentioned. Harvey was released from intensive care 4 days later and we took him home still very unsure about what was going on. It was a further 3 weeks later when Harvey had his vision checked that it was clinically confirmed that Harvey had Stickler Syndrome. Harvey is very short sighted, but due to the excellent eye team at Leeds hospital from the age of 10 weeks old he has worn contact lenses. Harvey suffers joint pain daily and often has dips in his hearing. Again thanks to the team at Leeds hospital Harvey has under gone a successful cleft palate repair at the beginning of 2011 and is now undergoing intense speech therapy. The Stickler Syndrome Support Group (SSSG) has provided not only support but invaluable information and advice to me and Harvey’s wider family. I know Harvey will gain a lot from this group in the future and I really want to help make sure it’s there for him and other suffers when they need it. The work the SSSG do fully relies on donations. For more information regarding Stickler Syndrome or the SSSG please visit http://www.stickler.org.uk/info.htm.

Also see http://www.yorkshirepost.co.uk/lifestyle/health-and-family/dad-s-run-for-support-group-1-4324936

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.

So please dig deep and donate now!

	well done steven Donation by auntie ann on 09/05/12	£10.00 + £2.50 Gift Aid
	well done steven Donation by dianne kieth matt on 09/05/12	£10.00 + £2.50 Gift Aid
	Mission Complete Mate ! Sorry its not more Donation by Ricky Slater on 27/04/12	£5.00 + £1.25 Gift Aid
	Well Done Steve!! x Donation by Emma on 22/04/12	£50.00 + £12.50 Gift Aid
	Go Steve! We're watching for ya!!! X Donation by Vicky, Jimi, Molly & Bump xxx on 22/04/12	£10.00 + £2.50 Gift Aid
	know you can do it steven Donation by josie donoghue on 22/04/12	£10.00
	Good Luck, Steve. Remember, good (tested) footwear and it doesn't start till the 20 mark ! Donation by John Painter on 17/04/12	£20.00 + £5.00 Gift Aid
	good luck steven Donation by sam butterwood on 14/04/12	£20.00
	good luck steven Donation by coffee morning on 31/03/12	£80.00 + £20.00 Gift Aid
	boom!! Donation by chip hall on 30/03/12	£52.00
	Found a fiver on gym floor, no takers so donation time! Donation by Anonymous on 30/03/12	£5.00 + £1.25 Gift Aid
	Donation by racheal furness on 29/03/12	£10.00 + £2.50 Gift Aid
	good luck steven Donation by margret harrison on 29/03/12	£20.00 + £5.00 Gift Aid
	Well done Steve. Lovely photo of you and your lad!! Donation by Paul Sorby on 19/03/12	£10.00 + £2.50 Gift Aid
	Donation by Pat Craven on 16/03/12	£10.00 + £2.50 Gift Aid
	Good luck Steve, your doing brilliantly! Donation by Anonymous on 13/03/12	£10.00 + £2.50 Gift Aid
	Hi Steve, Keep up the good work. Hope you have plenty of trainers. What a great cause to run for. Best wishes Paul and Pam Tarn Donation by Pam Tarn on 13/03/12	£50.00 + £12.50 Gift Aid
	Good luck Steve, keep going! Donation by Lorna, Justin, Lottie and Sonny on 13/03/12	£5.00
	well done to my grandson steven and my granddaughter nicola for a great effort on sunday running the bath half marathon love to you both Donation by nanan joan on 12/03/12	£40.00
	Donation by Anonymous via SMS on 12/03/12	£1.00 Donation from an Orange mobile: Unfortunately Orange has charged p to process this SMS donation. This is the only fee that will be applied to the donation.
	Good luck Steve Donation by Michael Sanderson on 12/03/12	£10.00 + £2.50 Gift Aid
	A general collection from Matt's relatives! Good luck Steve! Donation by The Rakes Family on 11/03/12	£33.00 + £8.25 Gift Aid
	Good luck mate! Donation by Darren Francis on 11/03/12	£5.00 + £1.25 Gift Aid
	Good luck!! Donation by Anonymous on 09/03/12	£5.00 + £1.25 Gift Aid
	Good luck Steve (& Nicola) Sorry we can't be there to cheer you on but it sounds like you will have plenty of support. xx Donation by Maxine on 09/03/12	£20.00 + £5.00 Gift Aid