Thanks for taking the time to visit my JustGiving page and this is why I am raising funds for Stargardt's disease.

On our second visit to Moorfields when my eldest son was diagnosed with Stargardt's Macular Distrophy we were numb, "So nothing's changed, you are no worse off than before you went" was one of the cruellest comments we could have heard from a so-called friend.  They were wrong.  Before the diagnosis we had hope that this could be sorted and now we knew there was no treatment, no cure and glasses could not correct his vision ... he is visually impaired. My second son then said he thought he had what his older brother had and some months later he was also diagnosed with SMD. We were told it was very unlikely a cure would be available in their lifetime but they agreed to help in hospital research projects.  Fifteen years later there is hope on the horizon, treatment is being developed but there is still much more research to be done.

http://www.moorfields.nhs.uk/condition/stargardt-disease 

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