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Victoria's page

victoria ashby is raising money for Action Duchenne
In memory of Carl Dean Tilson
Donations cannot currently be made to this page
Action Duchenne exists to support, empower and equip every DMD community in their journey from diagnosis and beyond.

Story

Thanks for taking the time to visit my JustGiving page.
Donating through JustGiving is simple, fast and totally secure.  Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity. So it’s the most efficient way to donate – saving time and cutting costs for the charity.  I am doing this as a friend recently died from this condition he was diagnosed at 5 years old. I am making people aware there is no cure but people with this condition are living a longer life well at least till 30s my friend was 2 years away from being 30 before this people with DMD only lived to 25  

Thanks for Donating every little helps even if its just £5 or less then that please share with friends and family if you want more information about DMD please let me know

Carl suffered from Duchenne Muscular Dystrophy a muscle wasting disease. He fought the disease until his last breath last Wednesday evening where he lost his battle, he was 28 years old.
 During his life Carl battled tirelessly to raise both money and awareness to find a cure for this awful disease and after his death we would like to do the same and help the charity to end anymore suffering from this illness. The more people donate the more chance the charity has got of either finding a cure or helping raise awareness of the condition me and carl was in the same class at school up till we left at the age of 16 and after then we lost touch with each other i was so sad to hear of his death DEFO as i found out from a friend on Facebook. 

ABOUT DUCHENNE MUSCULAR DYSTROPHY

Duchenne Muscular Dystrophy, or DMD, is one of the most common, fatal genetic disorders diagnosed in children around the world.  DMD is an X-linked disease, meaning that it predominantly affects males, and it results in the progressive wasting of muscles throughout the body.  The disease has an estimated incidence of 1 in 5,000 and a patient population in the developed world of approximately 50,000.  Approximately two thirds of new DMD cases are due to inherited mutations with the remaining one third resulting from spontaneous mutations where there is no  family history of the disease. DMD is caused by different mutations in the dystrophin gene that result in DMD patients being unable to produce dystrophin, a protein essential for maintaining healthy muscle function. The absence of dystrophin results over time in the deterioration of muscles and leads to the loss of ambulation, loss of respiratory and cardiac function and ultimately death, typically by the time DMD patients reach their late twenties.  There is currently no approved therapy for the treatment of DMD applicable to all DMD patients that seeks to alter the progression of the disease.

Please help me either by texting or clicking donate on my page it's a good cause i'm raising money and am also raising awareness.

I support Action Duchenne because of their continued belief in Research,and their involvement at all levels with Children, Adults and their Families" John Miller, Grandparent

to text a Donation just text CYNA 83 

With the amount you wish to Donate, you can Donate 

£1 £2 £3 £4 £5 or £10

text to 70070


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Donation summary

Total
£50.00
+ £10.00 Gift Aid
Online
£50.00
Offline
£0.00

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