The mission of the IFCR is to treat and cure CDKL5 Deficiency Disorder. We are committed to funding research that will bring about treatments and, ultimately, a cure. We strive to raise awareness of this rare disorder and, above all, we seek to support all CDKL5 families by providing the most current information on treatment advances and resources for how to live their best life possible. We are a parent-led, volunteer organization. Our budget comes primarily from the fundraising efforts of our CDKL5 community. Thank you for your support!