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We aim to raise money for Great Ormand Street Hospital, by doing as many
random things, individually and together. As well as to show our
support for our bird Tracey and Alfie!
Alfie was born in July
2008 with a rare heart condition called transposition of the great
arteries ( his arteries were in the wrong place) At 16 days old he
under-went open heart surgery in which Alfie's heart stopped. During this
procedure it was discovered that Alfie suffered from a rare condtion
called Pulmanory Hypertension, a condition which causes the pulmonary
artery to expand in size and block the airway. After this operation
Alfie's parents were put in contact with a children's hospice and told
to expect the worst. For 9 days Alfie was in intensive care and heavily
sedated.
Recently Alfie has had a setback and spent Christmas and
New Year in the hospital because of his condition. He has stopped
breathing numerous times and is on medication daily.
Pulmonary
Hypertension is a disease in which the blood pressure in the arteries in
the lungs elevates putting pressure on the heart and reducing the
amount of oxygen that is able to reach the tissues in the body.
Unfortunatley
at the moment, there is no cure!!!!
The reason why we have set up this page is to highlight not just Alfie
and what he is going through, but also to highlight the amazing work
that the doctors and nurses do at Great Ormand Street Hospital. Their
help and support have helped Tracey, Rob and Alfie as well as many other
families though such difficult times. Great Ormand Street Hospital help
thousands of children each year but never seem to get the recognition
that they deserve.
Our aim is to change that! By fundraising as much as
possible and showing not just the hospital but Tracey, Rob and Alfie
that we care even when we aren't there in person.
If you want any
more information on Alfie and his condition or what (the sisters) are
up to, drop us a line. All support is good support.
Thank you xx
"Promise me you'll always remember: You're braver than you believe, and
stronger than you seem, and smarter than you think." Christopher Robin to
Pooh
The Fantasic Fundraising Event ♥ Facebook group