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BOB STEVENS's Fundraising Page

Robert Stevens is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)
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Flora London Marathon 2009 · 26 April 2009 ·

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

Thanks for visiting my fundraising page.

In 2006 I completed the Marathon in 6 hrs 53 minutes after hobbling the last 6 miles!! At the time i vowed never to do it again, but seeing the runners the following year I forgot my pain and wanted to again do my bit for the only charity who supports my boys.

 Oliver and Samuel are now 9 and 7 and have been on their desperately needed Enzyme Replacement Therapy since April 2007. They are making good progress but there are many children who do not have a medicine to help ease their life limiting symptoms. The MPS Society is vital in providing us with  the support we need and for providing research into securing a treatment for the children who desperately need it.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: The Society For Mucopolysaccharide Diseases gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor me now!

Thank you!!

Bob

PS Please check out Oliver and Samuel's website www.oliverandsamuel.com

Donation summary

Total
£1,929.20
+ £308.06 Gift Aid
Online
£1,147.20
Offline
£782.00

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