Very shortly after Christmas 2017 my lovely friend’s life was turned upside down when their 10 year old son was diagnosed with Adrenoleukodystrophy (ALD). unfortunately, the damage to Williams brain is too severe for a bone marrow transplant and is untreatable.
This young, beautiful, loving, happy little boy and his family do not deserve to go through this tragedy. The family are in desperate need for funding towards kitting out Williams new sensory bedroom-including bespoke Wetroom with specialist hoist for the future. This will help to aid Williams independence and also enable Emma and Chris to relax and enjoy family time together in a safe environment for William.

Williams parents would like to raise awareness for this illness and my daughter Isobel would like to do a 1 mile sponsored swim to help raise money for William.

The swim will take place at the Lamas centre on Sunday 03.03.2019, during one of Isobel’s normal training sessions, it will be over seen and verified by the head coach of her swimming club.
About Adrenoleukodystrophy (ALD...
Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18 000 people. It most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain's neurons -- the nerve cells that allow us to think and to control our muscles. It knows no racial, ethnic or geographic barriers.
The most devastating form of ALD appears in childhood, generally between the ages of four and ten years old. Normal, healthy boys suddenly begin to regress. At first, they simply show behavioural problems, such as withdrawal or difficulty concentrating. Gradually, as the disease ravages their brain, their symptoms grow worse, including blindness and deafness, seizures, loss of muscle control, and progressive dementia. This relentless downward spiral leads to either death or permanent disability, usually within 2 to 5 years from diagnosis.