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Ben SukiYumi raised £205 from 18 supporters
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Closed 29/12/2018
Iʼve raised £205 to Raising money for William, a 5 year old in Yumi's class at school with the muscle wasting condition, Duchenne Muscular Dystrophy.
- Funded on Saturday, 29th December 2018
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Story
If I hit my target I'm going to be made a fool of by a Tottenham Legends football team. What better way to guarantee I get what I deserve whilst raising money for this amazing cause.
Here is an extract from William’s parent’s website;
’William, our beautiful, caring, funny, articulate little boy was diagnosed with Duchenne Muscular Dystrophy in January 2016 at just 3 years old.
Duchenne MD is one of the most common fatal genetic disorders to affect children around the world. 1 in 3500 boys are affected with DMD. It is a devastating, progressive and currently incurable muscle-wasting disease. Duchenne results in progressive loss of strength and is caused by a mutation in the gene that encodes for dystrophin, a protein that plays a key structural role in muscle fibre function. Boys with DMD do not produce dystrophin.
Life expectancy is improving as standards of care and knowledge about Duchenne increase however, there is currently no cure for Duchenne.
As a family we had never heard about this condition, and we are still learning.
We want to raise awareness of William and Duchenne – we need a cure, but we also need to ensure a fabulous life for our boy too so we set up Defending William Against Duchenne in January 2018. Launch of ‘Defending William Against Duchenne’’
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Supporters
18
Mike Barnea
Sep 9, 2018
£10.00
Darren Harper
Sep 7, 2018
make sure you kick at least one spurs legend, if you can call them that....
£5.00
Daniel Threadkell
Sep 2, 2018
£15.00
Kerri
Sep 2, 2018
£5.00
Fred Corbett
Sep 2, 2018
Well Done.
£10.00
Abbie
Sep 1, 2018
You have got this :) go out there and win :) such an important cause and love to William x x sending loads of love and hugs x x x x x x
Phoebe Williams
Sep 1, 2018
xx
£10.00
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