Raised: 123%
Target: £1,500.00
Raised so far: £1,848.59
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My story

 

Welcome to my fundraising page for the Dystonia Society!

Well, I hobbled home and this weekend after completing the Test Way. 

Several aspects of the sponsored walk have greatly exceeded my expectations: the generosity of your support of course and the weather were the most welcome, whereas the size and number of my blisters were maybe less so. I’ll be doing a brief write-up and will include it on this justgiving webpage. 

It’s looking like we’ve raised over £1600 for the Dystonia Society which is a fantastic result, as well as raising awareness of the condition (including, hopefully, a mention in the local papers). When the Gift Aid is added in as well (which this year I’d like to think is being funded from the repayments of MP expenses) the total could be close to £2000! 

I’d like to thank everyone again for your brilliant support and donations. This justgiving webpage (http://www.justgiving.com/davekeene) will remain open for another 3 months if you are still thinking of sponsoring me.

Dystonia is a neurological movement disorder that causes muscle spasms. It affects men, women and children of all ages and ethnic groups and there are up to 40,000 known sufferers in the . The muscle spasms cause abnormal movements and postures, such as involuntary closing of the eyelids, twisting of the neck or loss of function of speech muscles. These muscle spasms can be painful and debilitating and Dystonia has no cure. Treatments are available but are not always effective.

My wife Rossana suffers with a form of Dystonia called Blepherospasm that affects her eyelids, causing them to close tightly and effectively making her blind for significant periods of time. She’s not been able to work since March 2008.

The Dystonia Society (http://www.dystonia.org.uk) is a charity that provides practical and emotional support to people living with this neurological condition.

I wanted to do more to help and support the Dystonia Society and to make more people aware of this condition. I therefore decided to do a sponsored walk to raise funds for the charity on 12th to 14th June this year.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: The Dystonia Society gets your money faster and, if you’re a taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to are added to your donation.

Dave - glad you completed your walk, and glad to contribute. Praying too that your wife will come through to full recovery. Steve Donation by Steve Boler 02/07/09  

Many congrats Dave - better late than never with this donation!! Donation by Penny Kinloch 28/06/09  

£10.00 + £2.82 Gift Aid

keep up the pace! Donation by mitch and mary 19/06/09  

£40.00 + £11.28 Gift Aid

Hope the tea and cakes went down well. Great that you could do this for the Dystonia Society Donation by Wendy 17/06/09  

£3.00 + £0.85 Gift Aid

Well done Dave. Hope the blisters are healing Donation by The Benhams 16/06/09  

£30.00 + £8.46 Gift Aid

Well done Dave Donation by Mike Briggs 16/06/09  

£5.00 + £1.41 Gift Aid

enjoy ! Donation by Lisanne 13/06/09  

£25.00 + £7.05 Gift Aid

Go Dave! Donation by marianne and paul 13/06/09  

£25.00 + £7.05 Gift Aid

Good luck Mr Keene - I'm sure I'll completely mess this up, so give me a Ring at Risley if I do!! Do I need to give my address for gift aid?!! Donation by Stephen Horton 12/06/09  

£3.50 + £0.99 Gift Aid

Good Luck Donation by Steve Parkinson 12/06/09  

£5.00 + £1.41 Gift Aid

Still many thxs for those golf clubs! And what's wrong with a beard, Rossana? ;-) Donation by Stefano Tine' 11/06/09  

£25.00

All the best Dave! Donation by Pat and Andy Lloyd 10/06/09  

£10.00 + £2.82 Gift Aid

Remeber your blister kit!!! Good Luck Donation by Elaine Shrimpton 10/06/09  

£10.00 + £2.82 Gift Aid

Good Luck Donation by Rob Nelson 10/06/09  

£10.00 + £2.82 Gift Aid

Good luck DAVE. Donation by Cheryl Baldwin 10/06/09  

£10.00

Best of luck. I hope the weather is kind to you. Donation by Declan Murphy 09/06/09  

£20.00 + £5.64 Gift Aid

Best of luck, all love and best wishes to Rossana Donation by Nick and Sue Willmot: Red Watch, Majorca 08/06/09  

£10.00 + £2.82 Gift Aid

Best wishes. Hope it is not too hot (worse than rain)! Donation by John Thornley 06/06/09  

£20.00 + £5.64 Gift Aid

Good Luck Donation by Wai Liu 04/06/09  

£10.00 + £2.82 Gift Aid

Good luck Donation by Margaret Herbert 04/06/09  

£20.00

Hope the weather's kind Donation by Nick Stokell 03/06/09  

£20.00 + £5.64 Gift Aid

Best of luck Dave. Hope the blisters don't get the better of you. Donation by Tony & Simonne Wheat 03/06/09  

£10.00 + £2.82 Gift Aid

Donation by Ralph Gollcher 03/06/09  

£10.00 + £2.82 Gift Aid

Hi Ho, Hi Ho, it's a long long way to go! But our best wishes go with you. Donation by Colin Hughes 03/06/09  

£10.00 + £2.82 Gift Aid

Have fun Donation by Nick Harman 03/06/09  

£15.00 + £4.23 Gift Aid

Donation by Marc Seatter 03/06/09  

£10.00 + £2.82 Gift Aid

Hope you know lots of songs to sing to help you on your way! Donation by Helen Beddow 03/06/09  

£10.00 + £2.82 Gift Aid

Look after those feet Donation by Jon Stokes 03/06/09  

£10.00 + £2.82 Gift Aid

Good Luck Donation by Kev Delaney 03/06/09  

£5.00 + £1.41 Gift Aid

Best of luck, and I hope it doesn't rain too much Donation by Paul Dixon 03/06/09  

£20.00 + £5.64 Gift Aid
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* Total raised online: £1,358.59
  Offline donations: £490.00
  Gift Aid plus supplement: £355.58

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