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Emily is running the London Marathon

Emily Garthwaite is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)
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Virgin London Marathon 2013 · 21 April 2013 ·

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

This coming April I will be running the London Marathon for my two incredibly talented cousins, Tom and Louis Garthwaite.

 I am consistently in awe of these two astonishing people and they serve as a continual inspiration to all who meet and know them. Tom is going to Oxford University to study Biochemistry after gaining exceptional grades in both GCSE’s and A-Levels. Whilst Louis received equally exceptional grades in GCSE’s and recently cycled 60 miles for MPS Society with a group of friends from school. As you can imagine I am immensely proud of my cousins for all they have and will achieve. They will never cease to amaze me.

I will be raising money for the MPS Society that helps and supports people like Tom and Louis who suffer from Mucopolysaccharide diseases. Tom and Louis suffer from MPS II otherwise known as Hunter’s Syndrome.

 

Your donations will help MPS Society in many many ways, these include:

           

ü  To raise funds for research into Mucopolysaccharide diseases that may lead to improved clinical care, quality or life and new therapies.

ü  To provide support to individuals affected by Mucopolysaccharide diseases, their families and the professionals who care for them.

ü  To increase awareness of Mucopolysaccharide diseases amongst health care, social care and education professionals.

ü  To extend this to the community at large to secure improved local services and inclusion for affected children and adults and their families

 

This is a very worthy cause that are providing people like Tom and Louis with a better shot at life through Enzyme Replacement Therapy (ERT) (of Elaprase® for MPS II and Aldurazyme® for MPS I) and Bone Marrow Transplants.

Please do donate and make a difference to someone's life, by doing so there can be "Care today" for sufferers and "Hope Tomorrow" for their future.

(If unsure about whether to donate, please visit the MPS Society website for additional information - http://mpssociety.co.uk/)

 

 

Emily x

Donation summary

Total
£4,060.00
+ £491.25 Gift Aid
Online
£3,820.00
Offline
£240.00

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