As most of you know i had a brother called Sanjit.
He was diagnosed with a condition called Fucosidosis, which is a genetic disorder. This meant that Sanj couldnt talk and didnt develop like a normal child, but found other ways to show his feelings and interact!
Although life was hard for him, in and out of hospital, he had a strong personality and showed everyone that he touched, a way to love and interact without words.

There are only a few HUNDRED children like Sanj in the WORLD, and due to the condition being so rare there isnt enough research being spent to learn more.

I have completed the 13.1 miles in 2 hours 6 mins on my own in Scotland , where we used to live because this is a place where i remember sanj smiling and laughing.
I have chosen to give all the donations to the MPS charity who actively provide special services for kids with these genetic conditions.

Sanjit sadly passed away in Aug 2002, but in his memory i hope to raise money and help other families and children with the same condition.


Thankyou

Rav Dadi