Story
Right everyone my eldest son Dafydd who is only 12 years old has taken it upon him self to take on an epic challenge to support Ty hafan hospice who support his youngest brother and us as a family.
On the 28th of May, Dafydd will carry 10kg of coal from Cardigan to Newcastle Emlyn along side Criw Glo who he very much looks upto.
He is doing this because he has recognised what amazing charity Ty Hafan is, after a recent stay there as a family.
George his youngest brother who is 6 has a rare genetic disease called SCN8A and SPTAN1, which causes George to have complex medication resistant epilepsy which causes over 100+ seizures per day, global development delay, mobility issues, autism and further medical issues which severely effects George. Along with these george has been diagnosed with limited life expectancy.
We take everyday as they come as a family to enjoy life and make memories. As we don’t know what’s around the corner.
Tŷ Hafan is one of the UK’s leading paediatric palliative care charities and offers care to children and support for their families, throughout Wales.
We are extremely proud of Dafydd for taking on this epic event
We will keep you updated on his journey.
