This May I am participating in the inaugural Dazzle Walk to raise money for The Ehlers-Danlos Support UK. At the age of 27 I was diagnosed with hypermobile Ehlers-Danlos syndrome. It took 27 years of my life to get the jigsaw to fit together and sadly following an awful recovery from surgery to be diagnosed with something I was born with. I have been misdiagnosed many times over the years too which is super common for most of us with hEDS. Since then I have fought to bring my body back to optimal health and through the resources & support of Ehlers-Danlos Support UK, I have the best quality of life in as long as I can remember both mentally and physically. I wouldn't be here quite so early in my journey if it wasn't for the only UK charity dedicated to support us and our nearest & dearests. The charity has also meant I’ve found the amazing community on social media which are invaluable to every one of us zebras. I’m walking 27 miles on 22nd May for 27 years to diagnosis with support from some incredible best friends. If you’re reading this after May 22nd then see my IG a/c: @the_bendy_shaky_girl to see how we got on. 

Thank you so much for your donations in advance. Every penny counts to help us cope with an as yet, incurable condition 💛