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Rather stupidly I have decided to run the Stroud Half Marathon once again, in aid of the Williams Syndrome Foundation. This year three friends are joining me - Hannah Turner, Rob Ridgway, and Kevin Smith. The bottom line is that in return for our efforts we would like some of your money !
My daughter Evie was born with Williams Syndrome. It is a very rare genetic disorder which affects 1 in 25000 – generally it creates learning difficulties, lack of co-ordination, muscle weakness, heart defects and occasional kidney damage. Normal development is generally delayed. The Williams Syndrome Foundation funds research projects and runs family support programmes for those with Williams. Liz and I are now the Regional Coordinators for the East & West Midlands areas so the charity means a lot to us.
Any donations that you can give will be greatly appreciated.
Cheers - Gareth, Hannah, Rob and Kevin