Raised: 153%
Target: £1,800.00
Raised so far: £2,747.00
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My story

 

Thanks for visiting our fundraising page.

Our daughter, Emily, was born in 2002 weighing just 3lbs 3oz and at 6 months old was diagnised with Russell-Silver syndrome, a rare genetic growth disorder. Ongoing research into this syndrome has enabled various genetic faults to be pinpointed in relation to RSS, and in 2007, Emily tested positive to a methylation fault on the chromosone 11p15. Whilst this doesn't mean much to a non-geneticist, having a definite diagnosis was a huge relief to us as parents, and means that all future research into this syndrome can be carried out on a gene-specific basis, meaning that further research will help the lives of many affected children in the future.

The Child Growth Foundation has offered us much support and help over the past 7 years and I know they will always figure highly as an important part of our lives. They help many families each year, either with getting diagnoses for their children or funding much-needed research, and also through organising an annual convention and putting affected families in touch with one another. The power of talking through a situation with someone else in the same boat should never be under-estimated.

An intrepid group of us have decided to take on the Great Glen Way - 78 miles of walking with a dramatic back-drop of the Scottish highlands, and - just to increase the challenge - we're squashing it into 3.5 days instead of the suggested 5. With distances of between 10.5 and 22 miles per day, we would love it if everyone would consider making it worth our while by digging deep!

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor us: Child Growth Foundation gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please dig deep and sponsor us right now! Thank you very much.

Well done to you all - v impressive!! Sorry to have been late in donating, but as they say, better late than never! xx Donation by Becks Du Pontet 26/06/09  

£10.00 + £2.82 Gift Aid

yee ha Donation by more britvic types 19/06/09  

£40.00 + £11.28 Gift Aid

Congratulations to you all!...and sorry for being so late in donating. Donation by Rachel, Mark, Bethan & Elinor 14/06/09  

£10.00 + £2.82 Gift Aid

What a great achievement, and that was just for organising it! Hope you don't have too many blisters xxx Donation by Marianne, Nick & Isadora 12/06/09  

£15.00 + £4.23 Gift Aid

Congratulations on a fantastic achievement not to mention the huge stack of cash you've raised for your charity Donation by Dave Eslick 10/06/09  

£30.00 + £8.46 Gift Aid

Well done Rachel and Party, you are all an inspiration. Donation by Lorraine Kent and Family 09/06/09  

£78.00 + £22.00 Gift Aid

Well done Al & Mike x Donation by Clare B 07/06/09  

£5.00 + £1.41 Gift Aid

What next year!!!!! Donation by David & Louise Gardner 05/06/09  

£30.00 + £8.46 Gift Aid

Well done Rachel, Dan and all of you! What a great cause and a fabulous achievement! Let's celebrate with coffee soon xxx Donation by Kirsten, Dan, Ben & Joseph 05/06/09  

£10.00 + £2.82 Gift Aid

Well done! So proud of you guys. Let's chat soon! Donation by Shaheen Bilgrami 04/06/09  

£15.00

Very well done Donation by ASC Finance for Business (Paul & Pat) 04/06/09  

£100.00

Well done! Donation by Diane Freeman 02/06/09  

£10.00 + £2.82 Gift Aid

Well done Hazel Donation by Gill 02/06/09  

£5.00 + £1.41 Gift Aid

Chris Loving your calves! Donation by Britvic Types 01/06/09  

£20.00

Hope it all went well Donation by Jennie Riggs 29/05/09  

£5.00

good luck Al & Mike Donation by Rae Fletcher 29/05/09  

£10.00

Good luck Mike! Donation by Jonny Rylands 29/05/09  

£10.00 + £2.82 Gift Aid

Donation by Rebecca Lonsdale 28/05/09  

£10.00 + £2.82 Gift Aid

with love to Emily Donation by Marie-Luise Simmons 27/05/09  

£10.00

Good effort Hazel and friends Donation by Matt, Keith and James Willard 27/05/09  

£18.00 + £5.08 Gift Aid

Donation by jeremy &Victoria Howard 27/05/09  

£10.00 + £2.82 Gift Aid

Donation by Mark Costello 26/05/09  

£5.00 + £1.41 Gift Aid

sorry this is late, hope it all went well! Donation by Chris Ramsbottom 26/05/09  

£10.00 + £2.82 Gift Aid

Better late than never :-) Good luck and hope all goes (or went) well. Donation by Mark & Toni 26/05/09  

£20.00 + £5.64 Gift Aid

Nice challenge and fantastic cause! Good Luck! Donation by Cecil & Claudien 25/05/09  

£10.00 + £2.82 Gift Aid

Fingers crossed it is all going well Donation by Lucinda, Nick, Thomas, Joseph, Samuel and Jacob 24/05/09  

£10.00 + £2.82 Gift Aid

Good luck to all Donation by Jon Money 23/05/09  

£15.00 + £4.23 Gift Aid

A great challenge for a fantastic cause ~ go for it!! Donation by Sam Evans 23/05/09  

£10.00 + £2.82 Gift Aid

Good luck to everyone, hope the weather is kind! Donation by Katie & Bryan 23/05/09  

£20.00 + £5.64 Gift Aid

Good luck! Breakfast's on me when you get back Donation by Tricia and Duncan 22/05/09  

£10.00 + £2.82 Gift Aid
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* Total raised online: £2,057.00
  Offline donations: £690.00
  Gift Aid plus supplement: £480.05

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