Story

 

It is with immense sadness that we report the news that Jamie Inglis lost his battle against neuroblastoma on 15 January 2013.

 

He passed away peacefully in hospital with his parents by his side. Jamie’s appeal was raising funds to cover his treatment costs in Germany. After these costs have been met, Jamie’s mum and Dad have asked that any remaining money is allocated to help other children having neuroblastoma treatment now and to fund research into this frighteningly aggressive cancer.

 

You can still fundraise in memory of Jamie and we are aware that many of his supporters are planning to do so. We have set up a new page in memory of this wonderful little boy called ‘Jamie’s Lasting Legacy’. Please click here to see his new page.

 

This fundraising page will also remain open for the time being.

 

From Jamie’s family and the team at the Neuroblastoma Alliance UK, thank you for your support for Jamie’s appeal and for all the messages of support for Jamie and his family.

 

What is neuroblastoma?

Neuroblastoma is a very aggressive childhood cancer.   

 

·          2 children are diagnosed with neuroblastoma every week in the UK

 

·          1 of those babies and children will have high risk disease, where the cancer has spread to other parts of their body like the liver, bones and bone marrow, lungs, skin and brain

 

·          It causes 15% of childhood cancer deaths 

 

·          It is the commonest ‘solid’ cancer diagnosed in babies and children

 

·          The long term survival rate for babies and children with high risk neuroblastoma is less than 40%—half the average survival rate for other childhood cancers

 

Treatments

Children with high risk neuroblastoma can receive chemotherapy, surgery, radiation therapy, stem cell transplant and immunotherapy. Different clinical treatments are being trialled in Europe—including the UK—and the United States.

 

Not all children can join UK trials to get the potentially life-saving treatment they need. Some of the trials, especially for relapsed neuroblastoma, are only available abroad.

 

About the Neuroblastoma Alliance UK

We believe that UK children with neuroblastoma should have access to the best clinical treatment available to them locally or internationally. Taking into consideration the individual nature of the disease, the best treatments available may differ for each child.

 

If children cannot join a British trial, or need a clinical treatment that is only available outside the UK, they may have to travel abroad to give them the best chance of beating the disease.

 

Children’s treatment options should not be limited by where they live.

 

What we do

The Neuroblastoma Alliance UK helps children with neuroblastoma, a very aggressive childhood cancer, if they can't join UK trials or need a clinical treatment that is only available abroad.  

 

We need your help to fund children’s treatment costs, to support families and to pay for research into the disease.

 

Find out more

We welcome any questions you may have about our work. Please call us any time on telephone 020 8203 0100 and 020 8202 9065 or email us on info@nballiance.org.uk. You can also contact us through our website.

 

Raising money for

Neuroblastoma Children's Cancer Alliance

Neuroblastoma Children's Cancer Alliance

Charity Registration No. 1135601

“All donations are paid into NCCA UK’s general funds to fund our charitable activities. Our charitable activities include: funding a child’s treatment against neuroblastoma, as well as sponsoring research, and promoting education and awareness of neuroblastoma.”

Donations 2704

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Keep on raising funds everyone and let Jamie's memory live on.

Donation by Kelfield Bingo Easter Raffle on 03/04/13

£60.00

+ £15.00 Gift Aid

text donation

Donation by Anonymous on 22/03/13

£3.00

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Donation by Anneliese Charlton on 19/03/13

£1.00

+ £0.25 Gift Aid

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In loving memory of brave wee boy. You inspired so many.

Donation by Joan Rhind on 16/02/13

£100.00

+ £25.00 Gift Aid

Donation by marianna proietti on 15/02/13

£260.00

+ £65.00 Gift Aid

From customers and staff at jerboas cafe and Glyn Hughes restaurant Hohne bfpo 30 xxxxx

Donation by Karen Trelfa on 14/02/13

£138.09

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Good luck and best wishes. I hope you reach your target and beyond.

Donation by christina walker on 14/02/13

£5.00

text donation

Donation by Anonymous on 08/02/13

£5.00

Donation by Linda Gibson on 08/02/13

£20.00

+ £5.00 Gift Aid

Donation by Anonymous on 08/02/13

£20.00

+ £5.00 Gift Aid

Donation by Adrienne Doyle on 07/02/13

£40.00

+ £10.00 Gift Aid

Donation by chris wright on 06/02/13

£250.00

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Sorry couldn't be there on 8th, Andy

Donation by Andrew Bustin on 05/02/13

£50.00

+ £12.50 Gift Aid

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In Loving Memory of Jamie x May his positivity and beautiful smile continue to help other children. All our love and prayers for this coming Friday.

Donation by Anna Carter and family x x x on 05/02/13

£20.00

Hope you reach your target soon and help more people with this illness, great cause in memory of a special little boy

Donation by Jackie Negus on 31/01/13

£5.00

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Jamie, you touched so many that never met you and changed the world for the better in the short time you were with all of us. X

Donation by Anonymous on 31/01/13

£10.00

+ £2.50 Gift Aid

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Donation by Emily Hendry on 31/01/13

$31.47

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Jamie you were amazing babes.. Lets do.it for the rest.. Xxx

Donation by juantelle matthews on 29/01/13

£5.00

+ £1.25 Gift Aid

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Donation by Anonymous on 26/01/13

£10.00

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For you, Jamie. Thank you for teaching us all how to keep smiling, and here's to standing up to this awful disease. xxxx

Donation by Lindsay Reed on 24/01/13

$30.08

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what a remarkable little boy. Sleep tight sweetheart. I'm so sorry for your family's loss.

Donation by lisa barnes on 23/01/13

£20.00

Donation by Alison Garnett on 23/01/13

£10.00

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I was so touched by Jamie's story and the love and strength of your family. My prayers are with you all. Sorry you couldn't win this one Jamie. xo

Donation by Anonymous on 22/01/13

$250.00

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Donation by Anonymous on 22/01/13

£10.00

+ £2.50 Gift Aid

Thinking of you all. Night night beautiful boy xx xx

Donation by Hayley Grey - Crewe on 22/01/13

£5.00

+ £1.25 Gift Aid

Donation summary

  • * Online donations£91,181.87
  • Offline donations£48,907.43
  • Text donations£2,259.00
  • Total raised£142,348.30
  • Gift Aid£16,376.82

* Charities pay a small fee for our service. Find out how much it is and what we do for it.