Jenson Belkevitz is a lively, fun and endearing little boy. At just four and a half years old, he has recently been diagnosed with Late Infantile Battens. Jenson has already gone blind and will start to experience other symptons of his condition in the coming years. Sadly he is unlikely to live to see his teenage years.

Despite his condition, he attends mainstream school in Newport Pagnell where he is a popular member of his class and loves to play with the other children.

He adores trains and music and has enjoyed family holidays at holiday parks specially adapted for blind children, with his parents and two older sisters.

Jenson's Fund was set up in January 2012 after Jenson's condition was confirmed.

Battens Disease is a group of diseases which are rare, genetic, progressive neurodegenerative, metabolic diseases that occur in children and adults. Symptoms include loss of vision, epilepsy and loss of abilities including walking, eating and talking. At present there is no cure and as yet, the treatment available will not make a significant impact on the progressive decline in bodily functions and inevitable early death.

There are different forms of Batten Disease and Jenson's condition falls into the category of Late Infantile Battens.

This form usually develops in early age up to around 9 years. Notable symptons include loss of vision, seizures, epilepsy, loss of motor abilities and dementia.

For more information visit: www.bdfauk.co.uk

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