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John O Groats to Lands End

Chris Taylor is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)

Participants: Chris Taylor, Chris Collins(Pigs), Ben Ronald, Keri Rees, Mark Cross, Mark Chantry, Dan Landon, Simon Roberts, Chris Hutchins, James Birt, Matt Abbott

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JOGLE for Joseph · 8 May 2011

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

<p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: Arial; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">Thanks for taking time to visit our JustGiving page.</span></span></p> <p class="MsoNormal" style="line-height: 125%; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="line-height: 125%; color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">Joseph Tilling is an amazing and happy little boy who is full of life and energy. He genuinely has a smile that can light up the room.</span></span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">He is an inspiration to many of us and although he is only 2 years old his bravery is already starting to show. Joseph has been diagnosed with a very rare genetic disorder called Mucolipidosis II. Devastatingly, Joseph&rsquo;s life expectancy is severely limited, his mum, dad and sister; Mel, Rich and Erin have of course had their worlds turned upside down. They do however look to a past without regret, and to an unknown future with positivity and hope, always ensuring Josephs life is jam packed full of love, happiness and new experiences.</span></span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">The Society of Mucopolysaccharide Diseases supports children and families with life limiting genetic disorders such as ML II. With only 1 in 326,000 babies being diagnosed annually in the UK, ML II is one of the most depleting diseases of the mucopolysaccharide family.</span></span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">As close friends of Rich and Mel we desperately wanted to do something to help and hence the 'Jogle (John O&rsquo;Groats to Lands End) for Joseph' challenge was conceived. The cycle ride will take 15 days and starts on April 23rd 2011, its worth bearing in mind that none of the group are accomplished riders, the majority having not been on a bike for some years! <em>9 blokes, 9 bikes, 950 miles &ndash; we will do it for Joseph!</em></span></span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">Thank you for making a donation below, we really appreciate your help and support and would love you to leave a comment. Please go to </span><a href="http://www.jogleforjoseph.co.uk/" target="_blank"><span style="color: blue;"><span style="font-family: Calibri;">www.jogleforjoseph.co.uk</span></span></a><span style="font-family: Calibri;"> to see lots more information.</span></span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">Wish us luck and thank you again </span></span></p> <p class="MsoNormal" style="line-height: normal; margin: 0cm 0cm 10pt; mso-margin-top-alt: auto; mso-margin-bottom-alt: auto;"><span style="color: black; font-size: 12pt; mso-fareast-font-family: 'Times New Roman'; mso-bidi-font-family: 'Times New Roman'; mso-fareast-language: EN-GB;"><span style="font-family: Calibri;">Chris Taylor</span></span></p> <p>&nbsp;</p>

Donation summary

Total
£18,429.91
+ £1,529.30 Gift Aid
Online
£8,219.91
Offline
£10,210.00

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