Story
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<p><span style="color: #000000;"><span>“Endurance is not just the ability to bear a hard thing, but to turn it into glory.” William Barclay.</span></span></p>
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<p class="MsoNormal"><span style="color: #000000;">My name is Lara, and I suffer from Ehlers--Danlos Syndrome, a connective tissue condition that affects nearly every part of my body, a<span>s well as causing most of joints to dislocate on a daily basis, EDS also affects my organs, mainly my heart and my autonomic nervous system.</span></span></p>
<p class="MsoNormal"><span style="color: #000000;">Unfortunately EDS is very unheard of.<span style="mso-spacerun: yes;"> </span>It is misdiagnosed and misunderstood all the time and it is my aim to try and get as many people as possible understanding and learning about what EDS is.<span style="mso-spacerun: yes;"> </span></span> </p>
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<p class="MsoNormal"><span style="color: #000000;">So, it is because of this that for the next six months of my life I am going to have a film crew filming my journey for a documentary that will hopefully be screened in 2011 to get our message out there.</span></p>
<p class="MsoNormal"><span style="color: #000000;">Your support is crucial to this project, I have no idea how I am going to get to that finishing line, but I will.<span style="mso-spacerun: yes;"> </span>When I started training I could walk about 2.5m before my symptoms kicked in, I have until April 17th to be able to walk 26.2m.<span style="mso-spacerun: yes;"> </span>I take alpha and beta blockers everyday to enable me to even stand up, I am having my right leg completely re-aligned, involving major surgery in August, so the hurdles before me are multiple and mammoth.</span></p>
<p class="MsoNormal"><span style="color: #000000;">Whatever you can sponsor me will go towards helping us find research for a much needed cure and giving us the chance to reach out to more sufferers to prevent misdiagnosis and misunderstanding once and for all.</span></p>
<p class="MsoNormal"><span style="color: #000000;">Please help me make our invisible, visible.</span></p>
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