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“Endurance is not just the ability to bear a hard thing, but to turn it into glory.” William Barclay.
My name is Lara, and I suffer from Ehlers--Danlos Syndrome, a connective tissue condition that affects nearly every part of my body, as well as causing most of joints to dislocate on a daily basis, EDS also affects my organs, mainly my heart and my autonomic nervous system. Unfortunately EDS is very unheard of. It is misdiagnosed and misunderstood all the time and it is my aim to try and get as many people as possible understanding and learning about what EDS is.
So, it is because of this that for the next six months of my life I am going to have a film crew filming my journey for a documentary that will hopefully be screened in 2011 to get our message out there. Your support is crucial to this project, I have no idea how I am going to get to that finishing line, but I will. When I started training I could walk about 2.5m before my symptoms kicked in, I have until April 17th to be able to walk 26.2m. I take alpha and beta blockers everyday to enable me to even stand up, I am having my right leg completely re-aligned, involving major surgery in August, so the hurdles before me are multiple and mammoth. Whatever you can sponsor me will go towards helping us find research for a much needed cure and giving us the chance to reach out to more sufferers to prevent misdiagnosis and misunderstanding once and for all. Please help me make our invisible, visible.
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Raised so far: £10,077.00
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hi laura thanks for inspiring me , I also have EDS and have been housebound since you have done this i have tried Archery and been Punting ! Donation by Michelle Jedrzejowska on 05/05/11 |
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Big congrats on your amazing achievement. Donation by Sue Eizzard on 05/05/11 |
£5.00 |
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Donation by abi rose on 05/05/11 |
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Donation by miyoshi koyasu on 04/05/11 |
£5.00 + £1.25 Gift Aid |
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Well done and thank you Lara. What an achievement both personally and financially. Donation by Jim Bird on 04/05/11 |
£10.00 + £2.50 Gift Aid |
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I have EDS myself - so know what a worthy cause it is and am always happy to donate to this charity. THANK YOU so much Lara for all your hard work :D Donation by Emily Simmons on 04/05/11 |
£5.00 |
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Donation by sara moses on 04/05/11 |
£10.00 |
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Very happy to donate to this cause and raise awareness of it and help in research for sufferers, I wish you well. Donation by Jackie Snow on 04/05/11 |
£10.00 + £2.50 Gift Aid |
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Lara,you are an amazing person. What a fantastic feat.Best wishes for the future. anna.r-04/05/2011 Donation by anna Robinson on 04/05/11 |
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well done Lara what an amazing achievement, look forward to the doc Donation by breda fitzpatrick on 04/05/11 |
£5.00 + £1.25 Gift Aid |
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Hi Lara sorry it's taken so long to have such a small amount spare but I hope it helps :-) Donation by Jean Eveleigh on 04/05/11 |
£5.00 + £1.25 Gift Aid |
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well done and good luck for the future. Donation by Alex F. on 02/05/11 |
£15.00 + £3.75 Gift Aid |
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Well done Lara on a fantastic achievement. Best wishes Bernice Donation by Bernice Walker on 27/04/11 |
£10.00 + £2.50 Gift Aid |
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Congratulations Lara on a fantastic effort!! Donation by David Raimondo on 26/04/11 |
£20.00 + £5.00 Gift Aid |
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Well done! Donation by Jonathan Beck on 26/04/11 |
£82.00 + £20.50 Gift Aid |
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Well done Lara, best wishes Laurel and William x Donation by William Levy on 22/04/11 |
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What can I say? You are the wind beneath my wings! xx Donation by Angela cohen on 22/04/11 |
£50.00 + £12.50 Gift Aid |
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well done! Donation by Alex Golombeck on 21/04/11 |
£25.00 + £6.25 Gift Aid |
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Lara, You are amaaaazing! Donation by Rodney Grahame on 21/04/11 |
£100.00 + £25.00 Gift Aid | |
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Wow, you should be so proud! What an achievement!! x Donation by Liz Blott on 21/04/11 |
£10.00 + £2.50 Gift Aid |
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This is for Gemma. I just smile when I think of what you have achieved Lara, BRILLIANT xx Donation by Derek on 21/04/11 |
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Good luck for this project, I think the finished product should be shown to all health professionals! Donation by Natalie Charlesworth on 20/04/11 |
£20.00 |
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Amamzing achievement, so proud of you and what you have done x Donation by Sara Levy on 20/04/11 |
£30.00 + £7.50 Gift Aid |
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Good luck Lara! We love you! Donation by Michael Fishberg on 20/04/11 |
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Congratulations! So impressed but never doubted it for a second! Lots of love Jemma, Jamie and Isabella Donation by James Reiff on 19/04/11 |
£30.00 + £7.50 Gift Aid |
| * Total raised online: | £8,717.00 |
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| Offline donations: | £1,360.00 |
| Mobile donations: | £0.00 |
| Total Raised: | £10,077.00 |
| Gift Aid plus supplement: | £1,815.47 |
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