Guy Veysey

It's legal up a mountain

Fundraising for DEBRA
£2,900
raised
by 85 supporters
Donations cannot currently be made to this page
Event: guy veysey's fundraising
guy veysey's fundraising, 30 June 2009
DEBRA

Verified by JustGiving

RCN 1084958
We provide care and support to individuals and families affected by EB

Story

Over the first weekend of August, Sandra, Lauren, Joe, Neil,Tony, Guy, Deighton and JB are undertaking the "Three Peaks Challenge": in under 24 hours, we have to drive to, then climb the highest mountain in each of England, Scotland and Wales - so one of the peaks has to be climbed at night!  We'll be doing this to raise money for the charity, DebRA. 

DebRA helps sufferers of Epidermolysis Bullosa (EB) - a very rare genetic condition in which the skin and internal body linings blister at the slightest knock or rub, causing painful, open wounds: it means that parents cannot even pick up their babies who suffer from it, eating of solids is, in many cases, almost impossible, as the mouth and throat also blister, and the disposal of the body waste is incredibly painful. When this condition applies, malnutrition is often a consequence, further reducing the body's resistance to infection.  The condition affects 1 in 17,000 births.

People with the more severe types of EB also have an exceptionally high risk of developing skin cancers, shortening their lives by approximately 30-40 years. In its most severe form, the condition is fatal in infancy.  As yet, there is no effective treatment or a cure.

 

About the charity

DEBRA

Verified by JustGiving

RCN 1084958
DEBRA is the national charity that supports individuals and families affected by Epidermolysis Bullosa (EB) – a painful genetic skin blistering condition which, in the worst cases, can be fatal. We fund pioneering research and provide care and support to individuals and families living with EB.

Donation summary

Total raised
£2,900.00
+ £569.74 Gift Aid
Online donations
£2,900.00
Offline donations
£0.00

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