Raised: 21%
 
Target: £100,000.00
Raised so far: £21,640.94
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Hi there,

Thank you for taking the time to meet our wee girl and find out why we want to raise so much money for Dermatology Research for Vascular abnormalities at (GOSH) .

It is not about just asking for money particularly for Bethan-May’s condition but for Dermatology Research at GOSH.   They net-work world wide in order to have the funds to learn more about  Glomuvenous Malformations (GVM) and many other vascular abnormalities which will help them treat Bethan-May and find the way forward to stop progression and enhance her quality of life.

Bethan-May was born with a very rare skin condition.  In March 2002 she was diagnosed with Glomuvenous Malformations GVM.  She was the first for GOSH, which also meant the first in the .  Since then they have diagnosed 14 other children. GVM has many presentations and for Bethan-May she is ticking a lot of the boxes.  When born she had 25% coverage now at the age 10yrs she has 75% coverage.  Her skin has purple vascular lesions (they look a bit like varicose veins with purple markings) from head to toe.  These make skin temperature control difficult, pain and discomfort is what she has experienced since birth and increases with progression of GVM.

Bethan-May has had many treatments over the years from Laser to Medical.  Unfortunately GVM Lesions have developed behind her eyes, which are of great concern. Hence Bethan-May under went a course of Oral Chemo from January 2008 to the end of April 2009.  This was yet again a first for a GVM patient but we are hoping it will give some management till research can give more answers and control.  Bethan-May had biopsies taken in July 2009 and we now await the next step in her drug therapy.

Our Dermatology team at Gosh are truly amazing, from their determination, dedication, support & constant drive to net-work worldwide, share & learn from others about GVM.

We started doing fundraising in 2006 for GOSH and raised almost £4000.00. In 2008 we decided to raise pounds directly for Dermatology Research. If you can help in any way we will be extremely grateful.

More information will be found on the website which is near its completion i.e. www.livingwithgvm.co.uk 

Many thanks from the Slater family

Jacqui Tim Bethan-May and Billy

Well done Billy for doing your first race 5km in 25 mins. I had fun doing it too. . Donation by Bethan-May on 13/10/08

 
£5.00

Well done Bethan-May for doing the run, I had fun doing it too. Donation by Billy on 13/10/08

 
£5.00

Tim-I hope you completed the Peterborough Fun Run-well done for raising the profile of Bethan-May's Condition. Donation by David Turnock on 13/10/08

 
£50.00 + £14.10 Gift Aid

This is only the beginning. Hoping you reach your target. We'll be supporting you all the way! Laura says "Your're a star!" Donation by Andy, Alison, Laura, Adam & Harry on 12/10/08

 
£20.00 + £5.64 Gift Aid

good luck with reaching your target Donation by grandparents of cameron on 12/10/08

 
£20.00 + £5.64 Gift Aid

You are 'top banana' and we know you will raise plenty of money. See you again soon. Donation by Ashley and Jo on 11/10/08

 
£20.00 + £5.64 Gift Aid

Saw your appeal on Anglia News. Hope the run goes well Donation by Anonymous on 10/10/08

 
£4.00 + £1.13 Gift Aid

Go for it. Hope you raise lots and lots. Best of luck. Donation by Tim, Liz and the boys on 09/10/08

 
£50.00 + £14.10 Gift Aid

Go, Go, Go have a fab run. Enjoy every minute! PMA all the way. Love & cuddles as always. Donation by Prange Family on 08/10/08

 
£20.00 + £5.64 Gift Aid

Make sure Aunty Rachel runs fast too! Good luck with reaching your target. You're a beautiful and brave little lady. Donation by Anonymous on 08/10/08

 
£100.00 + £28.21 Gift Aid

Have FUN with your fund raising :-) Donation by Simon Brodie on 08/10/08

 
£20.00 + £5.64 Gift Aid

I am a twelve year old with a glomus venous malformation in my head area probadly the only person with this.Well done and my support is with you. Donation by cameron haslop on 08/10/08

 
£10.00 + £2.82 Gift Aid

Good luck with this the first of many other fun(d) raising adventures Donation by Mike, Nas and Eloise on 07/10/08

 
£15.00 + £4.23 Gift Aid

Donation by Anonymous on 07/10/08

 
£20.00 + £5.64 Gift Aid

We'll be there with you on Sunday to kick off the fundraising...See you there! Donation by Aunty Rachel, Uncle Gareth, Toby & Hobson on 04/10/08

 
£20.00 + £5.64 Gift Aid

£'s raised from our snack club in the office for Gosh and research on Bethan-May's condition. Donation by Darren & Persimmon Staff including Tim on 01/10/08

 
£36.00 + £10.15 Gift Aid
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* Total raised online: £8,921.70
  Offline donations: £12,719.24
  Mobile donations: £0.00
  Total Raised: £21,640.94
  Gift Aid plus supplement: £655.81

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