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On Sunday 23rd May, Miriam and I will be doing the Wirral Coastal Walk to raise money for LMBBS. The walk is 15 miles long, starting off in Birkenhead with views of the docks in Liverpool, then along the beach lined coast of the Irish Sea and ending in the countryside overlooking the River Dee.
LMBBS is a rare genetic condition that affects approximately 1 in 100,000 people in the UK. The condition is very variable and affects patients in different ways but the majority of patients are born with extra digits, will lose their sight and struggle with their weight. Some patients also experience kidney problems which may require dialysis or a transplant.
The LMBBS charity offers support to patients and their families through a helpline, website (http://tempuri.org/tempuri.html) and annual conference where families can meet other sufferers and talk to professional to learn more about the condition and how to manage it. Having seen how much everyone enjoys the conference (including us and our fellow scientists that do research on LMBBS), we wanted to do our bit to help make sure that there will be a weekend conference next year.
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
