Story
Earlier this year our son Caleb (now 4) was given the devastating diagnosis of Duchenne Muscular Dystrophy
This is a progressive condition which stops muscles repairing themselves. 1 in 5,000 boys are born with Duchenne every year.
For now Caleb struggles with stairs, running, jumping and becomes easily fatigued. In the coming years he will need a wheelchair and ultimately more care and support as the condition progresses to the heart and lungs.
There is currently no cure for Duchenne but preventative treatments are improving all the time.
Next April I am running the London marathon for Muscular Dystrophy UK. Hopefully this will help raise awareness of this life limiting condition and help the search for continued treatments and maybe one day a cure.
Any support is really appreciated as we try and give Caleb and other boys with Duchenne the best possible future
Muscular Dystrophy UK is the charity for the 110,000 children and adults living with muscle-wasting conditions in the UK. There's currently no cure, and it many cases, it limits lives. MDUK do vital work in funding pioneering research into treatments and cures as well as providing vital information, advice, resources and support for individuals and families living with these conditions.All donations, big or small, are greatly appreciated. Thank you!