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Abseil for MPS Awareness

Teresa Jeffery is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)
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MPS Awareness Abaeil · 16 May 2015

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

Thanks for taking the time to visit our JustGiving page.

Teresa, Shane, Scott, Kate, Phil, Dave and Mark are abseiling 80ft down Berry Head in Brixham to raise vital funds and awareness of MPS.

MPS is Mucopolysaccharidosis a group of rare genetic disorders which are life limiting.

Corey has MPS1 / Hurler syndrome.  He has undergone a cord blood transplant to slow down the progression of the disease but still faces a challenging lifetime with many surgeries and therapies.

The MPS Society provide advocacy support for our family and funds vital research and clinical trials to try and find a cure for these diseases.  

PLEASE support us whilst we lower ourselves off a cliff - a morning of fear and adrenalin for us compared to a lifetime of unknown trepidation for our child.

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Donation summary

Total
£1,858.97
+ £113.00 Gift Aid
Online
£619.22
Offline
£1,239.75

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