Hello Friends,

Our precious little daughter Sophie has been diagnosed with Cystic Fibrosis.

Most people know very little about CF, so just to brief you.... CF is a life threatening disease affecting mainly the lungs and digestion. 

In CF there is a fault in a gene that controls the amount and composition of fluid lining airways and other organs. The fluid lining the airways is reduced, resulting in an excess of sticky secretions that are prone to infection and difficult to cough up. In the pancreas, the sticky secretions block the flow of digestive juices into the gut leading to impaired digestion and poor absorption of food.  So, as you can imagine Sophie is on a strict daily regime of medication which includes anti-biotics, Sodium Chloride & Enzymes. 

At present no cure has been found.  Average life span is listed as only 31 years for male (24-25 for female); so you will appreciate how desperate we are to help find a cure.

Please can you donate anything you can - every penny counts; as a result, you will be helping Sophie and the lives of many other children and young adults. In the UK, 5 babies a week are born with CF, unfortunately also 5 young lifes are lost to CF. 

Please help us to try and make a difference!.

A close family friend, Ken Urwin, has kindly volunteered to participate in the Great North Run '08 to help raise funds for the CF Trust. 

Thanks for your support, we really do appreciate it!

Love Nigel, Jo, Olivia & Sophie X

PS:  My Daddy is looking to participate next year - he can't run this year because he's had an inguinal hernia repair...what's all that about?, love Sophiex