paul yssennagger

paul's page

Fundraising for Nerve Tumours UK
£1,271
raised of £1,500 target
by 17 supporters
Donations cannot currently be made to this page
Event: Virgin London Marathon 2010, on 25 April 2010
Nerve Tumours UK

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RCN 1078790; SC045051
We provide specialist advice & support to reduce the impact of NF.

Story

Thank you all for donating, it helped me through the final stages.

I finished in 5hrs and 13 minutes, felt reasonably well afterwards, even better now after a whole day rest on the sofa yesterday.

Thank so much for all generous donations


Paul



Finally after almost 13 years, I have had a diagnosis for my daughter Saskia's symptoms of Dyspraxia and epilepsy - the condition that is known as 'the most common, unknown disease amongst children' - Neurofibromatosis. This condition was queried 10 years ago by her initial pediatrician, and finally diagnosed by Kings College Hospital, London last year!

To raise awareness about this unknown condition I will be putting my own body through it's paces! I will be running the London Marathon in April on behalf of the Neurofibromatosis charity. I can't do this alone! I need you to help me to raise £1500, so that the charity can continue to do the amazing work that it does.

Please donate generously, for every £10 donation I will allocate a 30 second time slot between 4 hrs 30 min and 5 hrs 30 min. The time slot closest to my actual finishing time on the day will win £100 from my own pocket...I just need you to donate!

Thanks so much for your help


Paul, and Saskia


About the charity

Nerve Tumours UK

Verified by JustGiving

RCN 1078790; SC045051
Nerve Tumours UK provides support and information, as well as campaigns and raises awareness on behalf of over 26,500 people in the UK who have NF, the group name for Neurofibromatosis Type 1 (NF1), NF2-related-Schwannomatosis (NF2) and Schwannomatosis (SWN).

Donation summary

Total raised
£1,271.00
+ £113.10 Gift Aid
Online donations
£771.00
Offline donations
£500.00

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