Paul Greenhalgh

Paul Greenhalgh's Fundraising Page

Fundraising for Ichthyosis Support Group
£2,495
raised of £2,000 target
by 80 supporters
Donations cannot currently be made to this page
Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
We support everyone affected by ichthyosis to improve their quality of life

Story

A Channel swimmer covers himself with grease once in his lifetime and it’s a bit of fun. But for an Ichthyosis sufferer, covering every inch of skin with grease is a daily chore.

Ichthyosis is a rare genetic skin condition. If thick greasy creams are not applied daily, the skin dries out leading to contractures so severe that they can break bones in tiny feet and hands, causing unimaginable pain. It’s an appalling condition, but few people know about it or understand it.

The Ichthyosis Support Group www.ichthyosis.org.uk needs to raise money to continue their excellent work funding research into a therapy for such a rare condition as well as providing the much needed support to those affected by ichthyosis through literature and educational conferences.

In September, Paul is leading a team of 5 swimmers in an attempt to cross the . Leaving in darkness, they will have to contend with the cold and dirty water, strong tides, changeable weather, waves and of course the boat traffic - the Channel is the busiest shipping lane in the world.

If you would like to sponsor Paul, and in so doing contribute directly the people suffering from this awful condition, please click on the link below. Both Paul and the Ichthyosis Support Group will be incredibly grateful.

About the charity

Ichthyosis Support Group

Verified by JustGiving

RCN 1142457
The Ichthyosis Support Group (ISG) is a small user led charity, run almost entirely by volunteers affected by ichthyosis to create a supportive network of sufferers, parents and medical professionals. The charity strives to raise awareness of the condition and the ISG amongst medics and the public.

Donation summary

Total raised
£2,495.00
+ £631.80 Gift Aid
Online donations
£2,495.00
Offline donations
£0.00

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