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Tuberous Sclerosis Association
The TSA  offers support, advice and specialist advisers to those affected by Tuberous Sclerosis (TS) and their families, and runs clinics and conducts research into this relatively rare genetic condition. 

Simon's nephew was diagnosed with TS aged six months, and now aged three is making good progress thanks to the dedication of his parents.

TSC is a devastating genetic disorder that disrupts how the brain works, often causing severe mental retardation. Even in mild cases, learning disabilities and short-term memory problems are common. Half of all TS patients also suffer from autism and epilepsy. The disorder strikes one in 6,000 people.  Being a relatively rare condition, it is under-researched with no clear and agreed treatment methodology.  Despite the genuine best advice of doctors, this leaves parents in the invidious position of making decisions that could determine whether or not their child learns to walk, to speak or to communicate on a subject the parents do not understand.

The TSA is there to provide help and advice, particularly in those first few heartbreaking weeks of trying to learn about a condition you have never heard of.  It was invaluable to Simon's nephew's parents, and in turn they now help those still at the early stages.

It isn't high profile, and does not have bequests like the larger charities, so it genuinely needs your help to operate.

Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor us: the Tuberous Sclerosis Association gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.

So please sponsor us now!