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Thank you for visiting my fundraising page
This year I'm hoping to complete my 5th London Marathon, raising monies for the 'Stickler Syndrome Support group or SSSG'
The SSSG is non profit making organisation that provides information for families, healthcare and medical professionals affected by or caring for people with Stickler Syndrome. They do not currently receive any government funding and rely totally on the generosity of donations.
One in 10,000 persons may be affected by Stickler syndrome. Some medical professionals believe that as many as 3 in 10,000 persons are affected, but further research is needed to confirm this. As an inherited condition, Stickler syndrome is normally passed from parent to child. There is a 50% chance of children being affected in this way although there are some recorded cases where it has occurred for the first time in a child.
Donating through Justgiving is quick, easy and totally secure. It’s also the most efficient way to sponsor me: Stickler Syndrome Support Group gets your money faster and, if you’re a UK taxpayer, Justgiving makes sure 25% in Gift Aid, plus a 3% supplement, are added to your donation.
So please sponsor me now!