Ride4Life

Paul Shields is raising money for The Society For Mucopolysaccharide Diseases (The MPS Society)
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Sanfilippo Ride4Life · 20 December 2012

The MPS Society provides specialist support to children, adults and families in the UK who are affected by MPS, Fabry and related lysosomal storage diseases and we fund research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions with no cure.

Story

Thanks for taking the time to visit our JustGiving page.

Every penny we raise will be going into research and clinical trials to help save the lives of children with Sanfilippo. This disease has no treatment or cure and families with Sanfilippo children have to watch their child die very slowly in front of them. Two of our precious children Sophie (9) and Tom Shields (7) both have this illness and their days are numbered. Hopefully in the not too distant future Sanfilippo children will have a treatment to limit the affects of the disease and one day a cure. We long for that day.

So please dig deep and donate. Huge thanks

www.ride4life.mobi

www.sophieandtom.co.uk

@ride4life2013

 

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Donation summary

Total
£52,549.67
+ £5,871.12 Gift Aid
Online
£28,949.67
Offline
£23,600.00

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