Story
Last year I lost my precious nephew at the age of 14 months. He passed away due to an awful skin disease called EB. Before he was born we knew nothing about EB. So my friends and I are doing the 5k Adidas Run in support of Debra and my nephew aka Chunky. Our little Chunky touched the hearts of so many, so we want to raise awareness for such a heartbreaking ilness.
Karima and I now promise to do it in the highest heels we have if we reach our target. Mine are 6.5 inches. No matter how much pain we feel in the 30mins - an hour it will take to do this 5k, it will never compare to that of an EB patient.
There is no cure for EB, and the life of an EB patient is a life of pain, but DEBRA do the most amazing work for people and families affected by EB.
EB is genetic, but not enough people are aware of it. The hospital where Chunky was born were not even aware of the disease. Please give what you can in support of this amazing charity, to help raise awareness and in memory of my darling Chunky.
Please also take the time to click on these links and have a read.
http://www.debra.org.uk/
http://en.wikipedia.org/wiki/Epidermolysis_bullosa
So, please
remember the times that we have sponsored you for something in the past, please support this amazing cause and sponsor us. This is a
charity that will always be close to mine, my families and my friends hearts.
This is for
Chunky
ALWAYS
xxxxxxx
Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.