To our Friends, Family and Colleagues
The Muir Maxwell Trust – supporting Children with Epilepsy
Just imagine if your child was diagnosed with epilepsy and what it might be like for them to have seizures with no warning, which if left untreated, may result in serious brain damage or even death? 70,000 children are living with Epilepsy in the UK of which 30,000 have uncontrolled epilepsy and 15,000 are chronic sufferers. Right now there is no cure for Epilepsy but with the right medication, 70% of seizures can be controlled, ensuring children can live with the illness and enjoy normal life such as school and playing games.The Muir Maxwell Trust was started in Edinburgh by Ann and Jonny Maxwell who have wrestled with 12-year-old Muir’s severe epilepsy since he was four months old, with little help and no one to turn to. In 2003, recognising this lack of support for children and their carers, they established The Muir Maxwell Trust (MMT). The Muir Maxwell Trust supports children with severe epilepsy by providing support and practical help, for instance, donating alarms for children suffering night time seizures. The trust relies on donations for 90% of it’s income and without this support many of their essential services would not be possible making life for severe sufferers, their families and friends all the more difficult (we all know what sleep deprivation feels like!).
Our Challenge – Saturday 15 May 2010
At 1,343 metres, (4,406 feet) Ben Nevis is Britain’s highest mountain, and rises from sea level two and a half miles south-east of Fort William.Ben Nevis forms a horse-shoe shape ridge with Carn Mor Dearg, with the mighty Nevis dwarfing the latter (nineth highest). These two mountains are connected by a narrow ridge with a rocky crest, the Carn Mor Dearg arete.
On fine days the views from the summit are awe-inspiring, the most immediate being to the east, over Aonach Mor and Aonach Beag beyond. To the south beyond Glen Nevis lies the rocky ridge of the Mamores, and still further the mystical mountains of Glencoe.
Approximately eight hours’ walking is involved over a steep gradient and uneven terrain. The ascent is likely to take at least five hours and the descent approximately three hours.
Your Support
Without a doubt, you can make a real difference to the lives of young children living with severe epilepsy. Every donation, no matter how large or small, will help the Muir Maxwell Trust in their ongoing commitment to all people with epilepsy. For example so far they have provided approximately 400 alarms to help nightime seizures. However there are 15,000 children affected like this so there is still a long way to go. Imagine the feeling you’ll have knowing that you have had a direct impact on the lives of children and families living in Edinburgh and feeling isolated and struggling to cope with the impact of severe epilepsy on a daily basis.· £640 would pay for one seizure alarm
· £5000 would pay for DNA sequenzer
Make a single donation online
THANK YOU! Your gift today means a lot to us, the Muir Maxwell Trust and especially the lives of hundreds of epilepsy sufferers, their families, friends and carers. We really appreciate your generosity and support, and take this opportunity to thank you for taking the time to consider this very important cause.
We take this opportunity to wish you well for 2010 – we are looking forward to rising to the challenge we have set ourselves and look forward to sharing our experience with you after our big day – Saturday May 15.
With love and best wishes from
Jo Gibb Trish McFadden Elaine Dale May woods
