Many thanks to K D Decoratives Ltd for their kind donation of £3300 and their continued support. Thanks to Richard Gloria and Matthew for their outstanding generosity.
We are also grateful to Jeff Hird of X-Liesure for his support and sponsored slim. We look forward to seeing the results of his efforts on the 1st December.
We can't thank Richard, Gloria, Matthew and Jeff enough for their help.
HURRAY, we have almost surpassed our target of £150,000! and are now close to the next target . Thanks to all who have supported us over the passed 18 months. We could not have done it without you. We have been staggered by the phenomenal support we have had and can't thank people enough. So far all events have been complete sell outs.
We raised over £20,000 at the two dinners we held in November and December.
FORTHCOMING EVENTS
Sponsored walk across Morecambe Bay on the 15th August. Entry cost £15 which can be paid online at www.justgiving.com/morecambebaytonyackroyd Email for full details to tonyackroyd@btinternet.com
A new target has been set which we believe CAN be achieved with the support of all our friends and relatives.
If you haven't already, please visit (www.sayhellotoedward.com) You can view the music video Never Say Goodbye, produced by some of Edward's incredible friends as well as keping up to date with our campaign.
The money raised so far has enabled the charity to start funding a research programme at Oxford University. We hope by this time next year to have some result and proceed to clinical trials sometime thereafter. This could not have been achieved without your support.
Edward, our 5 year old grandson who we believed to be a perfectly healthy child, was diagnosed in May 2007 with Duchenne Muscular Dystrophy; a degenerative and as yet, incurable muscle wasting disease.
Duchenne Muscular Dystrophy (DMD) affects 1 in every 3,500 boys born. It can also affect girls, although this is very rare.
Children with DMD cannot produce dystrophin, a protein necessary for muscle strength and function. As a result, every skeletal muscle in the body deteriorates. THERE IS NO CURE.
For the moment, Edward is a lively, child who adores life and doing everything that an active 5 year old enjoys. While the disease has yet to show its devastation, the stark facts about DMD are hard to believe:
DMD has a 100% fatality rate; on average DMD boys die in their late teens or early twenties; most boys with DMD are in a wheelchair from age 10-12 years old; DMD is associated with respiratory failure, heart failure, and debilitating orthopaedic complications.
The money raised by us will go towards funding critical research projects aimed at identifying a cure (and effective treatments), for this life shattering condition. ACTION DUCHENNE - Cure Duchenne Muscular Dystrophy (www.actionduchenne.org) is a registered charity and funds vital research.
If you prefer to donate offline can send a cheque to the charity at ACTION DUCHENNE Epicentre 41 West Street London E11 4LJ
WE NEED YOUR HELP. WITHOUT A CURE THERE IS NO HOPE FOR ANY BOY WITH DMD. PLEASE GIVE GENEROUSLY
Many thanks for your kindness in making this donation.
