Jibreel Arshad

Jib's Sky's the limit ride

Fundraising for The Society For Mucopolysaccharide Diseases (The MPS Society)
£1,196
raised of £10,000 target
by 80 supporters
Donations cannot currently be made to this page
Participants: Anyone who is rare
The Society For Mucopolysaccharide Diseases (The MPS Society)

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RCN 1143472 and Scotland SC041012
We support affected individuals & families to raise awareness of MPS diseases

Story

I am trying to raise money for the funding of Vimizim until NHS England make their decision in October. Vimizim is the only licensed drug which has been proven to slow disease progression for those affected by Morquio.

NHS England believe Vimizim doesn't provide enough benefit to fund. I will be cycling to prove them wrong. How far can I go? There's only one way to find out...

For more information on Morquio and the fight for treatment click below:

http://www.mpssociety.org.uk/conditions/access-new-therapies/current-campaigns-our-fight-vimizim/

About the charity

The Society For Mucopolysaccharide Diseases (The MPS Society)

Verified by JustGiving

RCN 1143472 and Scotland SC041012
The MPS Society provides professional support to children, adults and families affected by MPS, Fabry and related Lysosomal Storage Diseases and funds research into treatment and therapies. These diseases are rare, genetic, life-limiting conditions.

Donation summary

Total raised
£1,195.33
+ £211.50 Gift Aid
Online donations
£1,045.33
Offline donations
£150.00

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