Jamie Woods

Jamie, Charlie and Martin Run for Ellie!

Fundraising for RETT UK
£600
raised of £600 target
by 24 supporters
Donations cannot currently be made to this page
Event: 2010 Asics British 10K London Run, on 11 July 2010
Participants: Jamie Woods, Charlie Edwards, Martin Joyce
RETT UK

Verified by JustGiving

RCN 1137820
We change lives and give a brighter future to those affected by Rett syndrome. Now.

Story

On the 11th July, we three will be running the ASICS British 10K Run on the streets of London for Ellie Gordon. Ellie is our friend Becky Gordon's little sister who was diagnosed with Rett Syndrome in the summer of 2009 at 11 years old. 

Rett Syndrome is a rare neurological disorder, that affects mainly females and very few males; staggeringly every 5 hours a girl is born with Rett Syndrome. Although present at birth, it is usually undetected until major regression occurs at around one year of age, when children begin to lose acquired skills - this can be accompanied by distress and anxiety.

We are running for the UK's largest Retts Charity, Rett UK, who's overall mission is to improve and enhance the quality of life for all people with Rett Syndrome, their families and their carers. As well as supporting those affected, the charity aims to raise awareness of this rare condition, as well as promoting and encouraging research into the genetic, therapeutic and social aspects of Rett Syndrome - and crucially towards an eventual cure.       


A message from Becky Gordon:

"My little sister has the degenerative, severe neurological disorder that is Rett syndrome. Therefore she cannot communicate, walk, feed herself or do any of the things we all take for granted, and also the abilities she has at the moment, she will most likely lose over time. But she still has her personality, and anyone who sees her pretty little smile or hears her contagious laugh ends up giggling to themselves as well!


I just pray that I will be able to hear her beautiful voice sing one day, and that maybe I will be able to run with her through the crackling leaves of autumn like we used to, before she lost the ability to run. I will never forget the look of freedom she used to have, and i know this could be made possible- the symptoms have been reversed in mice, so why could they not be reversed in humans!"


Please dig deep and help us reach our target!

The Three Musketeers x

About the charity

RETT UK

Verified by JustGiving

RCN 1137820
Imagine being told your toddler you thought was healthy, but perhaps slow to progress, in fact had a rare and devastating disability that would leave them needing lifelong 24/7 care. Rett syndrome changes lives irrevocably. With your support Rett UK is there from the beginning. #ToKnowHerIsToLoveHer

Donation summary

Total raised
£600.00
+ £122.69 Gift Aid
Online donations
£600.00
Offline donations
£0.00

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