My daughter, Emilia was diagnosed with Alexander Disease in Apri, 2014. It is a cruel, debilitating  disease that only affects a reported 500 worldwide. Our days and nights are constantly faced with challenges and obstacles and unfortunately children rarely live past the age of 7 years old. Myself, along with our amazing friends and family are determined to make a positive difference to Emilia’s life and other children who are affected by these terrible day to day issues. Tom, Ross, Chris and I are running this years London Marathon so if you can spare a few pounds to encourage us to achieve as much as possible with our efforts and ultimately raise more money towards research into this horrible diesease, we would be eternally grateful.